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MagnusTheBrewer said:
Well, they want me back at the Mayo on Thursday for "systemic therapy" which I take to mean opdivo. I've asked the medical oncology doctor but, haven't heard back yet. Thing is opdivo is usually proscribed after surgery or other treatment has failed but, I haven't received any yet. I just went back to work today so, the timing sucks but, at least I'm moving forward.
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Nivolumab is a common immunotherapy, as both first and later-line therapy. It's even likely to be approved in the adjuvant setting for resected high risk melanoma (i.e., cancer free after surgery, but high risk of recurrence) due to a very successful clinical trial reported last month

A good resource to check out, if a bit on the technical side, are the NCCN guidelines. They compile information from pharmaceutical and off-label trials to create standardized guidelines (and catalog the evidence in a central repository). Drug labels aren't always updated with the latest trials and indications since they can only be amended if the company that markets it pays for it's own clinical trial.
 
Brainonska511 said:
Nivolumab is a common immunotherapy, as both first and later-line therapy. It's even likely to be approved in the adjuvant setting for resected high risk melanoma (i.e., cancer free after surgery, but high risk of recurrence) due to a very successful clinical trial reported last month

A good resource to check out, if a bit on the technical side, are the NCCN guidelines. They compile information from pharmaceutical and off-label trials to create standardized guidelines (and catalog the evidence in a central repository). Drug labels aren't always updated with the latest trials and indications since they can only be amended if the company that markets it pays for it's own clinical trial.
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Thanks for the info.
 
I'm at the hospital right now in between appointments. It is my biggest fear that a bump/growth on my wrist turns out to be dangerous. Then I read threads like this and see people handling much more complicated issues and getting through it. It puts my hypochondria at ease.
 
I just had my consult at the Mayo and been proscribed a drug called Votrient. They're waiting on future scans to see if it's worth the trauma to remove the kidney as the actual cancer spots are quite small apparently. I don't actually begin taking the drug until October 30th. The good news is the insurance covers it with 0 copay. Yay!
 
MagnusTheBrewer said:
I just had my consult at the Mayo and been proscribed a drug called Votrient. They're waiting on future scans to see if it's worth the trauma to remove the kidney as the actual cancer spots are quite small apparently. I don't actually begin taking the drug until October 30th. The good news is the insurance covers it with 0 copay. Yay!
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I wish I could enlist you in the military and then kick you out honorably. The best thing I'll ever get from my service is health care. Only gotta worry about wait times and prescriptions, and even those are $5-7-12 for any medication depending on generics or not.
 
MagnusTheBrewer said:
I just had my consult at the Mayo and been proscribed a drug called Votrient. They're waiting on future scans to see if it's worth the trauma to remove the kidney as the actual cancer spots are quite small apparently. I don't actually begin taking the drug until October 30th. The good news is the insurance covers it with 0 copay. Yay!
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Sounds like an alien race, The Votrient.
 
Scholzpdx said:
I wish I could enlist you in the military and then kick you out honorably. The best thing I'll ever get from my service is health care. Only gotta worry about wait times and prescriptions, and even those are $5-7-12 for any medication depending on generics or not.
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I already work for the DOD.
 
Well, I finally got squared away with Aetna specialty pharmacy for my cancer drug Votrient. They're located in Florida and sound like total flakes but, they overnighted the meds to me with zero copay so, it's all good. I got a copy of the bill they send the insurance company and the prescription is better than $11,000! Crazy games from big pharma. I go back to the Mayo January 3rd for MRI and other scans/tests. Hopefully the Votrient is doing what it's supposed to. No side effects other than low energy and occasional headaches. Thank you to the folks who've been asking and caring.
 
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Update. The neurology docs give me a clean bill of health but, the oncology doc will tell me tomorrow if the cancer drug is doing what it's supposed to. I also see the wound care specialists regarding the ulcers on my leg. The general thought is they're a side affect of the drug and having bad venous valves. I just want to find a way to get back to work.
 
MagnusTheBrewer said:
Update. The neurology docs give me a clean bill of health but, the oncology doc will tell me tomorrow if the cancer drug is doing what it's supposed to. I also see the wound care specialists regarding the ulcers on my leg. The general thought is they're a side affect of the drug and having bad venous valves. I just want to find a way to get back to work.
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Good luck today! Hoping for good news :^)
 
Stay strong MTB. Know what you're going through and the unknown can be scary. Everything will work out.
 
Didn't realize I was posting to a thread from September! All caught up now. Sounds like you're getting good news MTB. Will be following your progress and cheering all the way!
 
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