Work, life, cesspool. Son diagnosed with CP and forced to quit working from home.

ZaneNBK

Golden Member
Sep 14, 2000
1,674
0
76
A little background here. This is my first topic here outside FS/T and thank god for Firefox's spell-check as I'm drunk off my ass right now.

Last July I moved half-way across the country to work for a major retailer as my wife and I wanted to raise our son in the Mid-west. After about three months at said company I decided it was the worst environment I'd worked in, in more than the decade of my career's lifespan. Since my wife was the only daughter of my mother-in-law and her grand-son was only about a year old she decided to move with us.

After about three-four months, I was presented with an opportunity to work from home to develop a new software product. So I left the retailer for this new opportunity about six months ago. The only major down-side is that I'd have to work as a contractor and find my own health insurance.

Fast-forward six months and here we are. About a month ago my step-mother was diagnosed with breast-cancer. After doing a lumpectomy a few weeks later her breast cancer was worse than expected and they decieded she needed to go through a full mastectomy. The very next day my step-mother died. I wasn't close to her but I love my dad very much and I know they were deeply in love as well.

Four days later my son was diagnosed with Cerebral Palsy. It's a very mild form of CP but it means that his physical developmental delays will most likely not get any better. It also means that it's not possible for me to get private insurance for my family, especially with my wife's ongoing issues with OCD and migraines.

My current job, working from home, is a contract position and though I'm being reimbursed for medical insurance, it doesn't matter. I can no longer get private insurance and my COBRA will only last for another year.

Long story short, I've had the worst month of my life and I'm going to have to give up my dream job and return the to the worst job I've ever had because I can't uproot my family (including my mother-in-law) for the second time in 9 months and move to another section of the country.

On top of everything else I've started drinking way too much. I'm drinking every 2-3 days now. Going through a half gallon of 80 proof alchohol every two weeks.

The worst part is realizing that my child isn't going to be normal. I'd always hoped he'd exceed me and my wife in every way, like every other parent out there. There's still hope that he will exceed us. Regardless, we both love him with all our hearts and it hurts.
 

JEDIYoda

Lifer
Jul 13, 2005
33,986
3,321
126
Originally posted by: ShotgunSteven
That is a rough story, man. I am not much into prayer, but I will say a few words for you and yours. :sun:

count me in on that prayer thingee......hang tough dude!!!
 

JJChicken

Diamond Member
Apr 9, 2007
6,165
16
81
Man I feel for you. Just keep your head up and try and make each day better than the last. Take a positive attitude to life, and even the worst situations, one that you are definately in, will feel a little better. I modified a songs lyrics to give you some spirit, hope it helps:

You can't complain you was dealt this
hell of a hand being a man, feelin helpless
Because there's too many things for you to deal with
Dying inside, but outside you're looking fearless
While tears, is rollin down your cheeks
Keep steady and make it through each week
 

andylawcc

Lifer
Mar 9, 2000
18,183
3
81
dude, i know that's some rough shit you are going through, but drinking is DEFINITELY not the way out.
 

Sentrosi2121

Platinum Member
Aug 8, 2004
2,567
2
81
Your drinking isn't helping anyone at home right now. This is when your FAMILY needs you. Self pity isn't going to cure your son's CP and it's not going to do diddly to your next job. You've taken time out to drink your woes away, and that's only natural. But now put the damn bottle down, pull yourself up and face what reality is giving you. Be the rock your family needs you to be.

If you've got some wiggle room at work, ask your boss about the health care coverage they offer and talk to a representative about your situation. If they cannot find a way to insure you, there are private insurance companies that 'specialize' in these sort of cases. Google is your friend here.
 

Azraele

Elite Member
Nov 5, 2000
16,524
29
91
Sorry to hear of your troubles, but you're only compounding them with drinking. That being said, stop!

Also, look to the bright side of things (yes, it's there). Challenge the day, open your eyes, and see the world anew. Set goals, both small and large, and take steps to see them through.

 

olds

Elite Member
Mar 3, 2000
50,112
775
126
I feel for you and I am sorry. Isn't there something else you can do in that area?

On the drinking, you are a light weight so I wouldn't sweat it too much. Just keep an eye on it and maybe exercise when you feel like drinking if you think you are drinking too much.
 

Old Hippie

Diamond Member
Oct 8, 2005
6,361
1
0
Bummers all the way around.

Your drinking is not outta control, but it's not helping any.

You may hafta start with a little help for your head before you can help the rest of your family. Sometimes, just talking to a "Head help pro" gets things moving in the right direction.

You sound like a good guy and my :heart: goes out to you.

I wish I could do more to help ya.

You and yours are at the top of my prayer list.
 

nanette1985

Diamond Member
Oct 12, 2005
4,209
2
0
Zane - I have an autistic son. The "realizing my child won't be normal" part is a big hit, but you do get past it. Go ahead and drink, it really does help. You've had some intense stuff whack you, you need the break.

Regarding health insurance - autistic people can't get it either - start researching now. Look for CP support groups and see if there's anything out there. Keep asking around. Also, if the only reason you're going back to the job from h*ll is for the health insurance, be absolutely sure he'll continue to be covered - you might get a reassignment, and he'll be excluded.

So sorry to hear about your step-mother. You've really had a bad time.

Best to you - Pat
 

moshquerade

No Lifer
Nov 1, 2001
61,504
12
56
Your child has mild CP? Consider yourself lucky, that is so not the end of the world. The catcher on my HS softball team had mild CP. She was totally normal academically and physically except for walking slightly on her toes. It didn't affect her athletic ability one bit. She was a hella catcher and could give the ball a big crack.

The drinking... stop. Stop trying to drown your sorrows. It won't help. They will still be there when you sober up.

It sounds like you are a smart guy. Use that smartness to do the right things for your family. Your hardships aren't much worse than a lot of hardships we all have to endure at some point in our lives. Whenever I think I have it bad I look around and there are so many people who have it so much worse. Try that.

Good luck ZaneNBK, we are rooting for you. I am glad you posted your situation here and got it off your chest. Keep us updated as things get better. I know they will.
 

Phokus

Lifer
Nov 20, 1999
22,994
779
126
Originally posted by: princess ida
Zane - I have an autistic son. The "realizing my child won't be normal" part is a big hit, but you do get past it. Go ahead and drink, it really does help. You've had some intense stuff whack you, you need the break.

Regarding health insurance - autistic people can't get it either - start researching now. Look for CP support groups and see if there's anything out there. Keep asking around. Also, if the only reason you're going back to the job from h*ll is for the health insurance, be absolutely sure he'll continue to be covered - you might get a reassignment, and he'll be excluded.

So sorry to hear about your step-mother. You've really had a bad time.

Best to you - Pat

:confused: i have to disagree with the drinking part
 

Atheus

Diamond Member
Jun 7, 2005
7,313
2
0
You can't get medical insurance? At all? Perhaps you should consider moving somewhere with public health care...

Also, if it's any consolation, I drink *way* more than you. And my dad has cancer.
 

MotionMan

Lifer
Jan 11, 2006
17,124
12
81
Originally posted by: ZaneNBK
Long story short, I've had the worst month of my life and I'm going to have to give up my dream job and return the to the worst job I've ever had because I can't uproot my family (including my mother-in-law) for the second time in 9 months and move to another section of the country.

I think that is faulty thinking. Short term inconvenience for a long term gain is an OK trade-off.

Since you were willing to move once for a job, you should be able to do it again less than a year later, especially if it seems necessary.

Broaden your job search.

MotionMan

 

Mermaidman

Diamond Member
Sep 4, 2003
7,987
93
91
You stay at home and continue your contract work.

Your wife finds a full-time job and all of your get health insurance through her new job.

Your son will be in your care at home and/or daycare.

I'm concerned, however, that your working at home is contributing to your drinking problem. Do you have friends?
 

Leros

Lifer
Jul 11, 2004
21,867
7
81
I had a friend in elementary school with fairly bad CP. He had a fairly normal life. He wasn't able to play sports and stuff like that. He was a bit angry as well. But other than that he was normal and happy. Now he is 20 and doing great. He's really smart, has tons of friends, an attractive girlfriend, etc.

Mild CP shouldn't be a big deal at all.
 

Gothgar

Lifer
Sep 1, 2004
13,429
1
0
another :thumbsdown: for drinking, you need to be thinking clear to get through this, not drunk off your ass, when you could make some mistakes...
 

venkman

Diamond Member
Apr 19, 2007
4,950
11
81
See if you can get a software development job in Canada. Taxes are higher and winters are colder, but at least your son will be taken care of.
 

Throckmorton

Lifer
Aug 23, 2007
16,829
3
0
That's all really unfortunate, you have my sympathy. From what other posters have said, your son should be OK.

Originally posted by: venkman
See if you can get a software development job in Canada. Taxes are higher and winters are colder, but at least your son will be taken care of.

This is the bright side. You can move to any other of the developed nations, and your son will have universal health care, without any worry about preexisting conditions. This is exactly why it pisses me off when people treat health coverage as a personal responsibility issue. You didn't do anything irresponsible, and you're wealthy enough to afford it, but getting health insurance will be impossible.
 

skyking

Lifer
Nov 21, 2001
22,704
5,824
146
I'm really sorry about this shit sandwitch you got dealt man. I'm not going to bother you about the drinking, that is all within you to deal with, or not. You can send me a PM anytime to talk about it or anything else. Motionman has a good point, if a great job jumps up in your face, take wherever it is. Your cobra should tide you over until the company insurance kicks in. Take care.
 

Modelworks

Lifer
Feb 22, 2007
16,240
7
76
Having a child with a disability can be hard.
My sister is mentally retarded, they said she would never get above about a 8 year olds level, shes 40 now, and yes she is still like an 8 yr old in many ways.
Its a big burden and medical cost certainly don't help things. We couldn't get health insurance either and had to sell off stocks that my grandfather had in order to pay for the cost.

Is there any chance you can get time off from work ?

The reason I ask is it really sounds like you need some time away from things just to rethink things.
Maybe take the family and go on a short vacation for a couple days.
No phones, emails, or any of that stuff your putting up with at home.
Just you , your wife and kids.
It might help all of you to spend some quality time together away from all the crap.
 

thomsbrain

Lifer
Dec 4, 2001
18,148
1
0
Rough deal, man. Nothing screws up lives like medical problems. So disruptive and so expensive. :(

Do what you can to kick the sauce as soon as possible. You will be no good to your family as an unemployed drunk. They are counting on you!

Maybe your wife can get an administrative position somewhere to help with costs (and hopefully get medical benefits!?). Non-profit agencies often need admin assistants. They don't pay very well, but they tend to make up for it with amazing benefits that cover employees' entire family, and it sounds like you need that more than money anyway. If your mother in law is living with you, she can take care of your son during the day while you both work. In this day and age, this is a more common family arrangement than you might expect.
 

Capt Caveman

Lifer
Jan 30, 2005
34,543
651
126
Originally posted by: MotionMan
Originally posted by: ZaneNBK
Long story short, I've had the worst month of my life and I'm going to have to give up my dream job and return the to the worst job I've ever had because I can't uproot my family (including my mother-in-law) for the second time in 9 months and move to another section of the country.

I think that is faulty thinking. Short term inconvenience for a long term gain is an OK trade-off.

Since you were willing to move once for a job, you should be able to do it again less than a year later, especially if it seems necessary.

Broaden your job search.

MotionMan

I concur.
 

ZaneNBK

Golden Member
Sep 14, 2000
1,674
0
76
Thanks for all the support, it helps.

That's one of the tougher parts of being married to someone with OCD (Obsessive Compulsive Disorder). I can't really talk to her about my problems because she immediately flips out at even the hint of me being upset or unhappy which just makes the situation worse for both of us.

I know mild CP isn't a huge deal beyond the insurance issue, but it's just one of those things that takes a little while to come to terms with as a parent.

I know the drinking is selfish and needs to stop. Regardless of whether or not it's out of hand, it's still way too often for my comfort and it's time and money I'm taking away from my family.