Yeah, I thought I would be disabled for the rest of my life, no doctor would bother doing anything more then saying they can't find what is making me so ill, most just attributed it to catch-all conditions or outright ignored me. I still can't believe the change, I still am in shock in a way that such a small change (in diet) fixed such a horrible wasting condition, and it seems like a lifetime away despite it being about a month ago that I thought I would be stuck like that the rest of my life, and just the thought of going back to that state makes me feel a terrible coldness in the pit of my stomach.Originally posted by: SsupernovaE
I envy you. Once upon a time I had dreams of being a theoretical physicist and I put those plans into action knowing that muscular dystrophy would eventually take my life from me. Well, I got my bachelors and started graduate school. Less than one semester in it became evident that I would need 24 hour nursing care and the stress was too much to bear. Now I live on about the same as you.
In retrospect, I wish I had done something different. Like writing. Even though this disease has taken away every muscle beneath my neck, speech recognition has allowed me to be somewhat productive. I'm in the process of reeducating myself to try to do something.
Originally posted by: jaqie
Yeah, I thought I would be disabled for the rest of my life, no doctor would bother doing anything more then saying they can't find what is making me so ill, most just attributed it to catch-all conditions or outright ignored me. I still can't believe the change, I still am in shock in a way that such a small change (in diet) fixed such a horrible wasting condition, and it seems like a lifetime away despite it being about a month ago that I thought I would be stuck like that the rest of my life, and just the thought of going back to that state makes me feel a terrible coldness in the pit of my stomach.Originally posted by: SsupernovaE
I envy you. Once upon a time I had dreams of being a theoretical physicist and I put those plans into action knowing that muscular dystrophy would eventually take my life from me. Well, I got my bachelors and started graduate school. Less than one semester in it became evident that I would need 24 hour nursing care and the stress was too much to bear. Now I live on about the same as you.
In retrospect, I wish I had done something different. Like writing. Even though this disease has taken away every muscle beneath my neck, speech recognition has allowed me to be somewhat productive. I'm in the process of reeducating myself to try to do something.
There may be a fix for your condition in the future, who knows... Also, have you ever read up on Stephen Hawking? Your situation reminds me of his, in many ways...
Who said that? Not me!Originally posted by: JS80
self diagnosis?
I have wanted to work from the moment I started becoming too weak to work, and it has infuriated me the entire time that I could not support myself. I am one of those people that simply cannot STAND to not be busy doing something, or supporting myself. I was offered in-home assistance (help with cleaning, bathing, et cetra) and told I needed a wheelchair, but I steadfastly refused. At times I was so weak I had to go without bathing for a few days, and on good days something like that was all I could do, as an example. Getting up out of bed was even next to impossible some days, but I refused to allow myself to become completely dependant on others. I suffered for it, some days badly, but the fire never left my eyes, nomatter how hard it got, I would rather die then become totally dependant on others. And now thanks to finally knowing what I have and being able to treat it, I can finally DO THINGS for the first time in years. I have cried with joy this last month more then I cried for sadness the last year, especially when I was out running errands I had to do (bus system) from 9AM to 3:30PM a week ago. Although I was very sore and tired when I got home from being out of shape, I was actually able to do that, and that was just superwoman compared to what I have been able to do prior.srsly though :thumbsup: on your attitude on going to school and wanting to work!
Yes, he is. but...Originally posted by: SsupernovaE
Stephen Hawking is one of my inspirations. The difference between us is that he is a bona fide genius![]()
Originally posted by: D1gger
I own my own construction and real estate development business and make over $150k/yr.
Originally posted by: Mo0o
Everyone seems to be posting very realistic jobs and salaries. Whatever happened to that ridiculous assertion that everyone claims to make 100K+ that people insist on perpetuating.
Originally posted by: Ballatician
I think it would be interesting if you added categories for
Degree(s) and
From what School(s)
as well to the OP.
Originally posted by: Ballatician
I think it would be interesting if you added categories for
Degree(s) and
From what School(s)
as well to the OP.
Originally posted by: D1gger
I own my own construction and real estate development business and make over $150k/yr.
Originally posted by: Scouzer
Air Traffic Controller
$57k