• We’re currently investigating an issue related to the forum theme and styling that is impacting page layout and visual formatting. The problem has been identified, and we are actively working on a resolution. There is no impact to user data or functionality, this is strictly a front-end display issue. We’ll post an update once the fix has been deployed. Thanks for your patience while we get this sorted.

Ventilated quadriplegic at one years old.

Page 4 - Seeking answers? Join the AnandTech community: where nearly half-a-million members share solutions and discuss the latest tech.
All this "if you're not a parent you're not qualified to answer" stuff is crap. Does that mean that if a parent tortures their child non-parents shouldn't be allowed to say anything? Also, having a kid on a feeding tube is very different from a vent dependent quadriplegic with absolutely no hope of a normal life or any kind of recovery.
 
Sometimes some people who "will never walk again" walk again.
Sometimes people who have "imminent heart failure, surgery too risky, 2-3 weeks to live" live for another decade.

While I agree that this child will probably die within a year or two, and will probably never really get to "know" a full life, there is always that very very slim chance that some doctor somewhere will be able to do something that everybody thought was impossible, and maybe give this little girl a chance at a life. Even if the chance is pretty much 0, to the parents, that little bit is enough to keep on going. What right do any of us have to take that away from them?
 
BurnItDwn said:
Sometimes some people who "will never walk again" walk again.
Sometimes people who have "imminent heart failure, surgery too risky, 2-3 weeks to live" live for another decade.

While I agree that this child will probably die within a year or two, and will probably never really get to "know" a full life, there is always that very very slim chance that some doctor somewhere will be able to do something that everybody thought was impossible, and maybe give this little girl a chance at a life. Even if the chance is pretty much 0, to the parents, that little bit is enough to keep on going. What right do any of us have to take that away from them?
Click to expand...

She will never walk again, she will never eat again. She will die in months to 2-3 years. This illness has a 100% mortality rate by the age of 3. Nerve damage is never reversable. We are decades away to being able to reverse nerve damage.

If someone does find a way to reverse what happen to her, it would mean not only a cure for a this disease, but real treatment for other nerve damage disease such as ALS and Diabetic Neuopathy.
 
Last edited:
BurnItDwn said:
Sometimes some people who "will never walk again" walk again.
Sometimes people who have "imminent heart failure, surgery too risky, 2-3 weeks to live" live for another decade.

While I agree that this child will probably die within a year or two, and will probably never really get to "know" a full life, there is always that very very slim chance that some doctor somewhere will be able to do something that everybody thought was impossible, and maybe give this little girl a chance at a life. Even if the chance is pretty much 0, to the parents, that little bit is enough to keep on going. What right do any of us have to take that away from them?
Click to expand...

Luckily not my decision and I don't really fault the parents for making either decision and it's their child. Still I can't help but feel that it's like keeping them in hell to prolong their lives. The small chance that a doctor somewhere MIGHT be able to do something seems just as selfish an argument to me as the others. Again not my child so I'm not saying what I'm saying is 100% right. I just feel it would be so much better for all involved to let the kid go and try again, this time with medical tests to insure that the next child isn't born with the same condition.
 
With advances in technology, you can live a very fulfilling life without motor skills.
All you really need is an active brain.
I would keep my child alive if I knew they had normal brain activity.
 
edro said:
You could play WoW all day long and just have your parents feed you and take your crap out.
Click to expand...

A more likely scenario:

http://news.bbc.co.uk/2/hi/health/6201271.stm

'Baby MB' Case

On March 15, 2006, the High Court of Justice of England and Wales ruled that 17 month old "Baby MB" (identity withheld) was to be kept alive, contrary to 14 medical professionals' advice - one of the medics 'Dr. S' stating "I think that the cumulative effect of the condition's effects is that he has an intolerable life".[8] The judge said that "he felt the child gained enough pleasure from life to outweigh the medical evidence of his condition".[9][10] Baby MB died nine months later, in December 2006.[11]


selfish fuck IMHO. a baby who lives 2 years only under heavy medical care is a drain on resources
 
BurnItDwn said:
Sometimes some people who "will never walk again" walk again.
Sometimes people who have "imminent heart failure, surgery too risky, 2-3 weeks to live" live for another decade.

While I agree that this child will probably die within a year or two, and will probably never really get to "know" a full life, there is always that very very slim chance that some doctor somewhere will be able to do something that everybody thought was impossible, and maybe give this little girl a chance at a life. Even if the chance is pretty much 0, to the parents, that little bit is enough to keep on going. What right do any of us have to take that away from them?
Click to expand...

Great. You pay for it.
 
Ns1 said:
A more likely scenario:

http://news.bbc.co.uk/2/hi/health/6201271.stm

'Baby MB' Case

On March 15, 2006, the High Court of Justice of England and Wales ruled that 17 month old "Baby MB" (identity withheld) was to be kept alive, contrary to 14 medical professionals' advice - one of the medics 'Dr. S' stating "I think that the cumulative effect of the condition's effects is that he has an intolerable life".[8] The judge said that "he felt the child gained enough pleasure from life to outweigh the medical evidence of his condition".[9][10] Baby MB died nine months later, in December 2006.[11]


selfish fuck IMHO. a baby who lives 2 years only under heavy medical care is a drain on resources
Click to expand...

The kid in this story has the same illness as Baby MB, SMA Type 1. It is always fatal.
 
You must log in or register to reply here.

TRENDING THREADS

Back
Top