• We’re currently investigating an issue related to the forum theme and styling that is impacting page layout and visual formatting. The problem has been identified, and we are actively working on a resolution. There is no impact to user data or functionality, this is strictly a front-end display issue. We’ll post an update once the fix has been deployed. Thanks for your patience while we get this sorted.

Parkinson's Disease Treatment

I don't know how hard it is to get into a trial or anything like that, but I just wanted to say that not everybody falls apart. If you can get him well-medicated, you could slow the process down. I've met plenty of really great Parkinson's patients recently and their resilience has impressed me each and every time. You haven't lost anybody to it so you don't have to feel that way.
 
My grandmother had parkinson's for a long time, she just passed away a month or so ago. It seemed like a lot of her pain was caused by her stubbornness and poor outlook on life, but after so many years on parkinson's drugs, can you really control those feelings correctly anymore? I don't know.
 
Ok, people, where's the positivity? You are doing a poor job at comforting and are moreso solidifying the potentially untrue generalization that this is a terrible death sentence. The person will continue to be the person you know and love. Their degeneration will be hard, but it can be controlled and slowed with the correct drugs. It's not a fun situation to be in, but sometimes having something like this can be a blessing in disguise, allowing people to do what they couldn't before.

OP, I deal with multiple Parkinson's patients biweekly. They are some of the most interesting, sweetest, and hardest working people I know. Their determination is amazing and it gives you a greater appreciation for them. Enjoy the time you have with the loved one, but do not pity them. That is the worst possible thing you can do. Be there for support and just be there to talk.
 
Back
Top