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Just found out I have MS :(

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Originally posted by: Tetsuo
Originally posted by: Dulanic
From what I have gathered so far, the degree of the disease varies alot, some people end up in a wheelchair, some people never knew they even had it. So for now I am just hoping for the best. It is too early to tell how it will effect me overall.
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Just keep your head up bro 🙂 Even though it's not really a positive thing, make a list of the things you want to do, and try to accomplish them. It might help, I don't know.
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I think it will cause me to majorly reevaluate my life. In some ways I know it will be a positive thing, in many others obviously it will not be. I do know 75% of MS cases do not end up with the person in a wheelchair, which is good, but the 25% still deff scares me.
 
Originally posted by: Dulanic
Multiple Sclerosis and I'm 23.
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WTF? Dude that sucks! And at 23...

One of my teacher's wife had it. Apparently there's mostly good days at first, with a few bad ones, and then the ratios slowly change over many years...
 
my aunt has it, it is a de-myelinator of the nerves.... get into the best shape of your life and be as active as possible...it will help....

God Bless you
 
It must be overwhelming right at this moment, but it's good to do what you're doing - learning as much as you can about it - and that will help you adjust.

I have a friend with MS who is in her mid-40s and was diagnosed 15 years ago. She works full-time and has a very active life, and the only thing you might notice is that she gets tired a bit quicker than most people. Hasn't changed anything about how she lives her life.
 
I was suprised to learn as many as 2.5 million people worldwide have it. 400,000 in the US. Also learned women are 2-3x as likely to get it as men... tho obviously men still can. And it is most common in people with northern europeon ancestry... which I am.
 
Originally posted by: kranky
It must be overwhelming right at this moment, but it's good to do what you're doing - learning as much as you can about it - and that will help you adjust.

I have a friend with MS who is in her mid-40s and was diagnosed 15 years ago. She works full-time and has a very active life, and the only thing you might notice is that she gets tired a bit quicker than most people. Hasn't changed anything about how she lives her life.
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Ya, I think it is the only way TO be, if I thought about all the downsides Id be going insane right now, so I look at the positives and go from there.
 
I thought I remembered hearing on the radio maybe a year or so ago that a cure was either found or just around the corner.

Have the doctors said how severe it is or given you an idea as to their recommended course of treatment?

BTW, I know Richard Pryor has done some things to try and help garner support for fighting MS.
 
Originally posted by: conjur
I thought I remembered hearing on the radio maybe a year or so ago that a cure was either found or just around the corner.

Have the doctors said how severe it is or given you an idea as to their recommended course of treatment?
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It is too early to really tell how severe it will get... I did find one big positive in it...

Most people with MS remember vividly the day of their diagnosis. For some, the news was a relief, giving a name and a reason for strange symptoms. For others, the news was a disaster, accompanied by images of the worst possible future. For everyone, it was the day life changed.



Before the changes are fully absorbed, MS physicians may press their patients for a decision about taking a ?disease modifying? drug. Studies show these medications are most effective when taken early on.
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Thats a quote from the national MS society website... it is good that it was caught early on, and that drugs may help especially if taken early on. However the downside is... cost of drugs average 12-14 thousand dollars a year.
 
Your going to be one of the fortunate ones. Hopefully as young as you are and with the new medications that are coming out. It can at least be arrested. Its good you are talking about it. I had polio at age 5 in Hawaii. Did not walk for a year. I was a lucky one.
Wishing you the very best...............John.........:sun:
 
good luck. I don't know if you are religious person, and I don't know about myself, but if my prayers ever go anwhere, they will be with you.
 
As heard on the radio just this Wednesday..."A new generation of drugs for arthritis, skin diseases and other immune-system disorders is on the way to consumers. Trial versions of the drugs, known as "biologic modifiers," are helping many people who've had no luck with standard drugs in treating chronic and sometimes debilitating diseases. Hear NPR's Richard Knox." scroll down, it's the segment titled 'New Drugs Target Immune-System Ills'

Mostly about psoriasis as that's what the drug study in this week's New England Journal of Medicine is about, but it sounds like this class of drugs have potential to help with MS as well. Some are already on the market for treating other conditions...maybe that's what you found already.
 
sorry to hear about your condition, one of the companies that I own stock in has a potential blockbuster MS drug (Antegren) is that in phase 3 trial, and hopefully get approved within the next 12-24months. Hang in there, Wish you the best!
 
Dulanic, I am very sorry for you. Educate yourself as much as you can and make the necessary changes in your lifestyle. Remember most of what you read is wost case scenario.

I too have had problems as of late with my eyes. I have seen an optical neuroligist several times. I have had a very head time focusing on objects and my eyes will often drift out of focus. Doctors told me the same thing, and I had my MRI on Tuesday. Fortunatly I am fine and I will start seeing a visual therapist soon (I did not know that there is such a thing. I had to trade in my regular glasses for ones with prysmatic lenses. Cannot wear contact any more.

The whole experience has been very frightning to say the least. The MRI was very frightening, not the actual MRI, but all the thoughts that were running through my head. I was scared. I can only image what you are going through. However, you seem to be taking this news very well. I do not think that I would have been able to do the same. I applaud you, stay strong, and live your life. Again most of what you read is worst case scenario.

Do you have family? Anyone to support you and help you through this?
 
Im so sorry to here this. I will pray for you tonight I have a gut feeling this is a missdiag get a second opion please. Also if it is the case god will see you thru all of you problems turn to him right now.


I wish you the best and I hope all turns out ok.



Your pal
Darkstar
 
It's good to hear about the hopeful drugs coming out, and hopefully I can live my life as normal. I do have a lot of people supporting me in real life and it is helpful. Thank you for all your kind words.
 
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