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Is there a doctor in the house? (narcolepsy question)

NTB

Diamond Member
Anybody here dealt with - or know someone who's dealt with - narcolepsy? (Falling asleep for no apparent reason) . My grandfather and my father were both diagnosed with light cases of it; as long as they're up and moving their fine. But they'll fall asleep within minutes of sitting down, sometimes even when somebody is talking to them. So I'm pretty sure I've got it; I've been sleeping through classes since Jr. High. Hasn't really bothered me until now though; I could usually keep up despite falling asleep in class. But this time it's getting the better of me, and it seems like there's nothing I can do to fight it. Doesn't matter how much or how little sleep I get the night before or whether I chug a big soda or some other sugar source right before class or not. Hell, I've tried eating differently, I've tried taking a nap between classes (thank god I'm in college and not highschool any more), I've tried everything I can think of. All with the same result. If I have to sit there more than a few minutes and listen to the proffessor blab on about something, I will fall asleep, despite my own best efforts. Now, if I have something to keep my brain occupied - homework, for instance - I can stay awake. But if all I have to do is sit and listen, I'm out like a light. Anybody have any suggestions?

Yes, I have gone to the doctor for it; the things that I've listed above are what they've told me to try. All for nothing - I'm still falling asleep.

Nate
 
Originally posted by: dnuggett
When you start to doze off, slap yourself really hard in the face. That'll wake you up.

Actually, I just wait until my head crashes into the table 😛

Truthfully though, my professors have caught me once in a while and called me on it - the adrenaline rush from getting busted (it's damn embarassing) is usually enough to keep me up for a while.

Nate
 
I also suffered through this for my 4 years of college -- In high school it wasn't too bad since the learning was more interactive than just sitting in a lecture hall watching a prof click through powerpoint slides. If you find any promising info on this please do share
 
Does anyone have a link to Rusty the narcoleptic dog?

It's sad that he has narcolepsy, but it's cute watching him run around and then collapse.
 
Originally posted by: NTB
Anybody here dealt with - or know someone who's dealt with - narcolepsy?
Hi, yes, I have narcolepsy and cataplexy; diagnosed a year ago. Probably had it since I was 16~18, a very typical age of onset, I'm now 32.

First, I would advise that you march into your regular physician's office and demand a referral to a board certified sleep disorder specialist. The lack of competent understanding and proper information WRT sleep disorders among many general/family practice doctors is appalling.

Having said that, narcolepsy is a classed disorder, not a symptom or behavior. Falling asleep at inappropriate times or difficulty staying awake when you should be alert is not necessarily, nor even likely to be, narcolepsy. There is more than one etiology (cause) for this symptom or behavior, such as obstructive sleep apnea, seasonal affective disorder, voluntary sleep deprivation (lifestyle), night-time insomnia, viral infections, thyroid disfunction, and idiopathic hypersomnolence, among others.

All of which, and much more, is the reason you should be seeing a physician who specializes in sleep disorders.
 
tcsenter -

I'm going to try and get to the family doctor this week; maybe I can convince him to reccomend me to a sleep specialist. Like I said, I've been to the doctor before for this, when I was younger, and All I got was run-around: Change your sleep habits, change your diet, have a soda before class, take "cat naps"....all the stuff I listed in my original post. I've tried it all, and none of it's done a thing.

I'm curious, though - having actually been diagnosed, what did your doctor tell you to do? My dad snores like you wouldn't believe, due partly to a fat tongue 😛 and partly to a many-times-over broken nose. They gave him some sort of machine (forget what it's called) to help him breathe at night, which helped considerably. But he still falls asleep as soon as he hits a chair, almost any time he's home. I don't snore, and I don't wake up - that I can remember - durring the night at all. My sleep habits aren't the most consistent in the world, but I usually manage 6-8 hours.

Nate
 
I'm curious, though - having actually been diagnosed, what did your doctor tell you to do?
Sorry for the late response.

There are established treatment guidelines for narcolepsy, including drugs and modifying one's daily routines, but effective treatment is sometimes complicated by the individualized nature of the disorder. Not everyone responds to the same treatment in the same way.

I will again emphasize there is more than one underlying cause of narcolepsy-like symptoms than narcolepsy. Narcolepsy isn't even the more likely or common cause of these symptoms. Obstructive Sleep Apnea (OSA) is vastly more common, which is why sleep apnea is always suspected before narcolepsy. It sounds as though your father was diagnosed with OSA. The airway machine is called a CPAP or BIPAP machine; Continuous Positive Airway Pressure or Bi-Level Positive Airway Pressure.

OSA is a very dangerous disorder if not detected and treated. Not only are people who suffer from OSA at great risk for driving or work accidents due to acute impairments of alertness, but long-term untreated OSA can greatly compound the risks for developing hypertension and heart disease, or greatly exacerbate existing hypertension and heart disease. OSA has been implicated in depression, chronically poor work and academic performance, and chronic fatigue.

Even more disturbing than the harmful consequences of OSA is the number of people suffering from OSA (or other sleep disorders) and do not know it. It is estimated that 5% of American adults suffer from clinically significant OSA, the vast majority of them have not been diagnosed. Although awareness of OSA among both health care professionals and the public has increased in the last several years, there is still a palpable awareness 'black-out'. The same is essentially true for all sleep disorders across-the-board.

Further, there are wide-spread and deeply 'ingrained' societal notions about people who seem to be suffering from a chronic lack of sleep. Those who seem overly tired all the time, have difficulty waking in the morning, being on time for school or work, have difficulty sleeping at night or staying awake during the day, among other textbook signs and symptoms of a sleep disorder, near always are viewed to have some character flaw that is the root cause of their problem. They are frequently branded as lazy, undisciplined, indifferent, irresponsible, unprincipled, lacking maturity, careless, misguided, incompetent, unmotivated, whiners, wimps, having confused priorities, just to name a few, or suspected of using drugs and partying too much.

Even those about whom wide-spread societal notions are held often share or buy-in to those same misconceptions. As a result, people suffering from the aforementioned signs and symptoms are very likely to fault themselves. The consequence is that people are resistant to seeking medical help or advice because the problem is not thought to be of a genuine medical nature.

The student who falls asleep in class or employee who is caught sleeping on the job may not be the 'lazy no-good bum' or 'irresponsible person' he is often made-out to be by teachers, high school counselors, classmates, co-workers, supervisors, friends, family, and parents alike. In fact, it is likely that he is not.
 
It prolly has to do with lack of sleep. If they/you are heavy snorers you might not be entering into the deepest phase of sleep or REM. If that's the case, you will be sleep deprived regardless of how long you are in bed. You will drop off as soon as you stop moving. I've seen this countless times. It has been related to weight gain too...so if you're hefty, you can minimize this by working out. Also, I would recommend seeing your regular doctor for a referral to a sleep clinic. They will evaluate your sleep at night and decide if you can benefit from a cpap, a breathing machine, to help you sleep. There are surgical procedures for removing some of the tissue in your throat but I hear that they are minimally successful.

See a doc, being dead sux.

Gravity
 
Originally posted by: IGBT
What happens when you drive??
I've had two accidents due to falling asleep at the wheel. Neither caused any injuries other than some post-accident soreness, thank God. The couple I rear-ended in the second accident were very lucky they were wearing seat-belts or they would have been seriously injured.

I can't remember how many near-accidents I've had, waking up just in time to see a traffic light and slam on my brakes, or drifting off the road, into the other lane of traffic, etc. I try not to think about it too much.

My narcolepsy was so out-of-control for a time that whenever I would hear on the news about a hit-and-run accident, I would wonder if it was me. I actually went out and looked my car over a few times to make sure I didn't run anyone down or something. Yeah, that bad.

I don't drive now except very infrequently, only making very short trips of a few miles or less, and only when I'm feeling alert. The State of California has a reporting requirement for physicians who diagnose or suspect clinically significant sleep apnea or narcolepsy, much as they would for seizure disorders. So persons have to take this DMV form to their doctor for a statement about how well-controlled their symptoms are or are not.

Only a handful of states have such a reporting requirement for sleep apnea or narcolepsy, but the number is growing. I don't disagree with it at all, its just that the real danger is not from people who are informed and aware of their disorder, but rather people who are not aware of it and are driving every day without knowing what they are up against.

I was one of them for about 10 years.
 
My dad will fall asleep anytime he is sitting down for more than 5 minutes, no matter if you are talking to him or not. Hell, he will be talking to me, and halfway through the conversation, he'll get quiet and I'll look over and he'll be asleep. While he was talking.
My older brother has seen the doctor about it, he falls asleep while driving... I don't fall asleep yet, I'm 32 years old, but if I want to, I can sleep anywhere, at anytime. If I shut my eyes I can be asleep in 45 seconds. But I don't have a problem staying awake either.. Sorta weird...

 
Hello,
I think you sleep deprived. Narcolepsy is sudden and not just when you are relaxed. It can happen when you are playing sports. The most dangerous is when you are driving. I think if you have this condition, you should not ever drive at all. Medication is limited and can only help a little. Medication does not control the condition fully.
For you dude, sleep at least 8 hours per day and the same time every day if posible. Irregular sleep can cause the problems you are having. As for your father and grandfather, the doctor must have seen something more than just sitting back and fall asleep. I don't understand what you mean by mild narcolepsy. Either you have it or you don't, there's no mild. I would ask for a second opinion on this matter.
As for being overweight, it does not help the condition but it's more related to sleep apnea. For this, you need a sleep study to confirm the diagnosis.
I hope that helps a bit.
 
Originally posted by: Bad_Dude

I think you sleep deprived. Narcolepsy is sudden and not just when you are relaxed. It can happen when you are playing sports. The most dangerous is when you are driving. I think if you have this condition, you should not ever drive at all. Medication is limited and can only help a little. Medication does not control the condition fully.
Au Contraire, Mo Fo! Umm, I mean, Mon Frère!

What you are describing as a "sudden" attack of narcolepsy while playing sports is not an attack of compelling sleep, but rather an attack of cataplexy (not to be confused with catalepsy).

It is a common misconception that people with narcolepsy can fall asleep at any moment with the result being some dramatic physical collapse. One might see this typically depicted in movies by a narcoleptic character appearing alert and awake one moment, and the next moment is seen cartwheeling out of their chair with a half-twist and crashing to the floor fast asleep. In reality, this type of sudden collapse is always the result of an attack of cataplexy, not sleepiness.

If you watch the video clip of "Rusty the Narcoleptic Dog", Rusty does not collapse because he 'fell asleep'. In fact, Rusty is fully awake. Rusty collapsed because he suddenly became paralyzed.

Cataplexy is a definitive symptom of narcolepsy, but it need not be present in order for one to have narcolepsy. Approx. half of all persons diagnosed with clear narcolepsy do not have cataplexy (findings range from 35% ~ 65% depending on the study, so we'll just call it 50%). However, unlike the primary symptom of excessive sleepiness, which has a number of causes other than narcolepsy, cataplexy is never found in the absence of narcolepsy.

Cataplexy is characterized by a sudden, temporary loss of skeletal muscle tone and deep tendon reflexes, resulting in acute muscle weakness, paralysis, or postural collapse, without loss of consciousness. An 'attack' or 'episode' of cataplexy is triggered by emotional response such as laughter, elation, or surprise, but may also be triggered by anger (e.g. playing sports), excitement (e.g. playing sports), or physical exercise (e.g. playing sports).

In the 'Rusty' clip, you may notice that just before collapsing, little Rusty is happily enjoying a few treats he finds in the grass. There is no more exciting and elating event in a dog's life than treats or dinner. This excitement or elation triggers an attack of cataplexy resulting in collapse. The 'food test' is the standard diagnostic tool for narcolepsy in dogs.

In the human model of narcolepsy, duration and severity of cataplexy varies greatly from one person to another.

Mild attacks of cataplexy typically consist of one or more of the following:

- generalized muscle weakness
- buckling at the knees or weakness in the legs
- drop of the head or jaw
- slackening of the facial muscles
- postural slumping or bucking
- slurred speech
- impaired (blurred/double) vision

Severe attacks of cataplexy may cause sudden paralysis of nearly all voluntary muscles in the body resulting in total collapse. Although it may appear the person has lost consciousness, in fact the person remains conscious and aware of their surroundings, but is unable to move or speak. Respiratory function, hearing, and voluntary eye movements are not affected.

The duration of the attack may last from several seconds to 20 minutes. Extreme cases have been documented lasting nearly 40 minutes. Following cessation of the attack, the person may feel no untoward affects and resume activity, or may need to sleep for up to 30 minutes before feeling refreshed.

Only a small percentage of persons who experience cataplexy have the severe 'paralyzing' form of it (fewer than 10%). The vast majority have the 'mild' presentation of cataplexy which often does not result in sudden collapse and severe impairment.

In contrast, episodes of overwhelming sleepiness associated with narcolepsy, often referred to as 'sleep attacks', are not 'sudden' at all, but develop gradually over a period of time, typically several minutes. A sleep attack is not an episode of compelling sleep, but rather a powerful feeling of sleepiness.

It is true that treatment rarely results in full control of narcolepsy, but that hardly equates to every person with narcolepsy being a walking time-bomb. I will reserve that characterization for the millions of persons who suffer from a serious sleep disorder such as OSA or narcolepsy but do not know it.

No expert or specialist in sleep disorders shares your misinformed opinion that persons diagnosed with narcolepsy should never drive or have their license to drive permanently revoked.
For you dude, sleep at least 8 hours per day and the same time every day if posible. Irregular sleep can cause the problems you are having. As for your father and grandfather, the doctor must have seen something more than just sitting back and fall asleep. I don't understand what you mean by mild narcolepsy. Either you have it or you don't, there's no mild. I would ask for a second opinion on this matter.
Au Contraire: Part Deux!

As with every other disorder, disease, and illness known to man, with the lone exception of death, narcolepsy and cataplexy afflict people to varying degrees of severity and/or extent.

Your information is rather faulty, nothing worse than bad information.

I recommend you get a second opinion on this matter. 😉
 
My roomate had it and it was very frightening to me, especially when I thought about her driving. I've also had a student who informed me about this -- she never actually went to sleep in my class but being aware of it (and that it was medical, not rudeness) was helpful.
 
I have had episodes where I have fallen asleep while driving, but I always woke up at my destination, except one time when I woke up and was not quite there yet. More recently I will sit down to put my shoes on or something, and wake up hours later.
 
Originally posted by: ShotgunSteve
I have had episodes where I have fallen asleep while driving, but I always woke up at my destination, except one time when I woke up and was not quite there yet. More recently I will sit down to put my shoes on or something, and wake up hours later.
That no good, man. Better get checked.
 
OK, I was diagnosed with narcolepsy almost 5 years ago. At first it wasn't a big deal, but then it became more so. I saw a doctor about it finally and he - *thud* zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz
 
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