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I am in need of fellow Anandtechers support....

M

maddmaxx

Senior member
I am at a point in my life that I never thought imagineable.

My baby girl (17 months) suffers from a seizure disorder that is very rare.... and I have been haveing a very hard time dealing with my baby girls diagnosis.

I get alot of strength from my baby girl as she smiles at me after every seizure she has...... She is a true display of strength....

It kills me to watch my baby girl go through this....... I don't know what to do........ I am her daddy and I should be able to help her... but I can't.....

I don't expect any answers from you fellow Anandtechers....but I just wanted to ask for your thoughts and prayers

peace

 
My thoughts and prayers are with you and your daughter. How does the prognosis look? Will it get better or worse over time?
 
The prognosis that we were given was very poor. We were told that most likely our little girl would never walk or talk, and that she would not live a very long life. But we have found that girls with this diagnosis tend to have a very broade range of disabilities/abilities.
If anyone is interested in looking at a site designated to this condition you can go Here

You can see my angel there too!!! 🙂

peace
 
....worst post ever

Ness1469.... sorry to waste your time.

I seriously doubt it was the worst post you have ever read on this forrum!

peace
 
Follow every avenue you can for medical advice for your daughter. What one Doctor can write off as a lost cause, another can diagnose and provide her with positive treatment. It can give your daughter a very promising future. Never give up hope.

Dean

P.S. Your daughter will be in my prayers tonight.
 
Thank you Dean for your support!

I can assure you that I will never give up hope......

We decided long ago (once the diagnosis was given) that we would give our daughter every chance we possibly could give her....

We will never give up hope... and we hope that others will never forget her!

peace
 
I would just suggest you to hang in there.
It has got to be really tough to watch something like this. All you *can* do is shower her with your love and keep her happy.

May god heal her and help your family out with this issue.
 
Originally posted by: maddmaxx
....worst post ever

Ness1469.... sorry to waste your time.

I seriously doubt it was the worst post you have ever read on this forrum!

peace
Click to expand...
I'd imagine he posted that when it was blank.....
 
Quote

--------------------------------------------------------------------------------
Originally posted by: maddmaxx
....worst post ever

Ness1469.... sorry to waste your time.

I seriously doubt it was the worst post you have ever read on this forrum!

peace
--------------------------------------------------------------------------------

I'd imagine he posted that when it was blank.....


even blank posts can't be worse than some of the crap I've reade on these forums 😀

peace
 
I would just suggest you to hang in there.

I can do so........

The support of fellow techers is much appreciated

peace
 
My baby brother (8 years younger than me) was/is epileptic. Grand Mal and Petit Mal seizures almost nightly until he hit puberty. He hasn't had a seizure in years.

Turned into a pretty good, solid man. He's married, a computer tech, and lives in Florida.

We also were told he wouldn't walk or talk or even survive to hit puberty. So absolutely hang in there!
 

MaddMaxx, I truly feel for your family, I am trying to imagine what if my 12 month old daughter... well I can't imagine.

I wish I could say something better, but my heart is truly ripped open for all of your family whom was touched by your little angel..

I will say a prayer for your liittle one and entire family
 
I'm sorry to hear about this...I was watching a show yesterday and some parents had a baby girl with seizures (different illness though than your daughter's). The doctors ended up removing half of her brain. Given her age she was expected to make a competent recovery, and no more seizures. Kids can sometimes make remarkable recoveries from injury. Hopefully you can find something for your angel 🙂
 
Thoughts and prayers for you and your angel. You are the one that needs the support, I'm glad you have that site

and others that are going through the same ordeal that can directly identify.
 
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