MRI just revelead a tumor on the left side of my father's brain

EPCrew

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Jun 2, 2000
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For almost a year now, my father has been in and out of the emergency room at least a couple of times and have seen specialists for different ailments.

If i remember correctly, it started off last summer when my mother rushed him to the ER after he began feeling numbness in his right arm and dizziness during a late night drive home. I do not remember the hospital doing much about testing his symptoms. i only remember them keeping him on a monitor. This happened again not too long afterwards and he linked the symptoms up with a couple of glasses of wine that he had had during the course of the evening. He believed to be borderlined diabetic and doctors began prescribing him medications for it.

Not too long after that, a pinched nerve in his back started giving him troubles and he was basically confined to laying on the floor for about 4 months while they waited for THREE cortisone shots to take effect. no good... they ended up performing surgery to alleviate the stress there.

It's been at least 4 months and since then, he hasn't been able to regain his strength in his legs. He still feels numbness in his right leg. The doctors just recently decided to perform a full body MRI. They don't know yet whether the tumor is benign. His doctor is currently making an effort to find a doctor at Johns Hopkins Medical Center to suit his needs.

Has anyone else here had any experience with this sort of thing? Any recommendations for the best medical care? He is located in NJ and we are currently looking into hospitals in Baltimore, NYC, and Penn. I'm so full of emotions right now and I can't help but feel completely useless while sitting here at work.
 

cKGunslinger

Lifer
Nov 29, 1999
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Jun 19, 2004
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Thankfully we live in an age where we can detect and fix stuff like this.

You and your family are in my prayers
 

EPCrew

Senior member
Jun 2, 2000
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My sister is ready to pull out all guns if sh!t hits the fan. Why does it take almost a year to find something like this? It's not like we never brought him to the ER or to see doctors. I do agree with her about being able to catch something like this sooner. i wonder if he really is diabetic at this point.
 

OrByte

Diamond Member
Jul 21, 2000
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goddam that is very sad to hear. I wish you and your family alot of strength to get through whatever it is the doctors discover.

 

Carbo

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Aug 6, 2000
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Originally posted by: EPCrew
My sister is ready to pull out all guns if sh!t hits the fan. Why does it take almost a year to find something like this? It's not like we never brought him to the ER or to see doctors. I do agree with her about being able to catch something like this sooner. i wonder if he really is diabetic at this point.
What does this mean? Get lawyers involved? Begin an expensive and emotionally draining legal action for medical malpractice? I would think that at a time like this, your sister's efforts need to be focused on your dad, not her pocketbook.
FWIW, Johns Hopkins is as good as it gets.

 

AdamSnow

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Nov 21, 2002
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Originally posted by: EPCrew
My sister is ready to pull out all guns if sh!t hits the fan. Why does it take almost a year to find something like this? It's not like we never brought him to the ER or to see doctors. I do agree with her about being able to catch something like this sooner. i wonder if he really is diabetic at this point.

They are human, just like everyone else...

If every time you went into the ER, they tested you for everything you would never leave...

Doctors do the best with what they have, and what knowledge they have... There's a reason they call it "Practicing medicine"
 

gnumantsc

Senior member
Aug 5, 2003
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All that exposure to MRIs for any little thing would not be good for you as well. Money does not solve problems and your sister would be wasting her time and energy because she doesn't have a case. Hence what Adam said Practicing MEdicine.

I do hope him well.
 

EPCrew

Senior member
Jun 2, 2000
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Originally posted by: Carbo
Originally posted by: EPCrew
My sister is ready to pull out all guns if sh!t hits the fan. Why does it take almost a year to find something like this? It's not like we never brought him to the ER or to see doctors. I do agree with her about being able to catch something like this sooner. i wonder if he really is diabetic at this point.
What does this mean? Get lawyers involved? Begin an expensive and emotionally draining legal action for medical malpractice? I would think that at a time like this, your sister's efforts need to be focused on your dad, not her pocketbook.
FWIW, Johns Hopkins is as good as it gets.

I do agree with you. We have our priorities and right now, it's determining the severity of my father's situation and what steps are going to be taken to improve it. My sister's not about the money. She makes enough money on her own. Not only are we sad at the events that occurred, but WE are angry that something like this wasn't determined much much earlier when it could have been.
 

Spineshank

Diamond Member
Jun 8, 2001
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The tumor could be benign. I just had 6 tumors removed from my knee and all were. I wish your father the best.
 

Proletariat

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Dec 9, 2004
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GO TO JOHN HOPKINS ASAP.

I mean TODAY. Try to drive him down there dude.

Seriously Cancer treatment has gone very far. Theres a lot of good options out there, but you have to get it fast. You don't want it spreading if its malignant.
 

EPCrew

Senior member
Jun 2, 2000
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Originally posted by: AdamSnow
Originally posted by: EPCrew
My sister is ready to pull out all guns if sh!t hits the fan. Why does it take almost a year to find something like this? It's not like we never brought him to the ER or to see doctors. I do agree with her about being able to catch something like this sooner. i wonder if he really is diabetic at this point.

They are human, just like everyone else...

If every time you went into the ER, they tested you for everything you would never leave...

Doctors do the best with what they have, and what knowledge they have... There's a reason they call it "Practicing medicine"

yes, practicing medicine is understood. it's been almost a year and it's not like he was at the ER just once. he has been in and out of the hospital on numerous occassions.

remember that i posted this... Numbness in thumb on backside of hand

It took me two doc appointments before they suggested that i go in for an MRI of the neck. One general doctor and then, one neurologist. And this is no where near as severe as what my father had gone through.

Like I said, I know my priorities and they are not creating lawsuits at this point.
 

EPCrew

Senior member
Jun 2, 2000
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Originally posted by: Proletariat
GO TO JOHN HOPKINS ASAP.

I mean TODAY. Try to drive him down there dude.

Seriously Cancer treatment has gone very far. Theres a lot of good options out there, but you have to get it fast. You don't want it spreading if its malignant.

I hear that they're top notch there. We are working on it right now.
 

djheater

Lifer
Mar 19, 2001
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You are understandably angry and hurt that your father's illness was not diagnosed, it's unlikely you'll be able to be very objective about this.
I would like to point out though that your father was treated for the symptoms he presented, right? Cortisone, blood sugar analysis, surgery.. and They felt they still weren't getting to the root of the matter and did a full MRI to see if they were missing something...
 

Proletariat

Diamond Member
Dec 9, 2004
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Originally posted by: EPCrew
Originally posted by: Proletariat
GO TO JOHN HOPKINS ASAP.

I mean TODAY. Try to drive him down there dude.

Seriously Cancer treatment has gone very far. Theres a lot of good options out there, but you have to get it fast. You don't want it spreading if its malignant.

I hear that they're top notch there. We are working on it right now.

They are very good down here.

Those docs should have figured out what kind of tumor it was already. I really think John Hopkins would be the BEST option for your father.

I'll give prayers to Buddha, Krishna, Jesus and the wind god for his steady recovery!
 

EPCrew

Senior member
Jun 2, 2000
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Originally posted by: djheater
You are understandably angry and hurt that your father's illness was not diagnosed, it's unlikely you'll be able to be very objective about this.
I would like to point out though that your father was treated for the symptoms he presented, right? Cortisone, blood sugar analysis, surgery.. and They felt they still weren't getting to the root of the matter and did a full MRI to see if they were missing something...

It began with numbness in his right arm and shooting pains down his right leg. at least a couple of ER visits just for that alone, where they did nothing but put him on a monitor. no tests whatsoever... Follow-up doctor visits led to prescribed diabetic medications.

Then 3 cortisone shots about 3 weeks apart from one another as an attempt to alleviate a herniated disc. Surgery followed when it did not progress quick enough. it was about 4 months.

Back is ok now but no strength in leg. Numbness still persists.

Like I said, I will think more about this later. Right now, we need to get him care right away.
 

Rudee

Lifer
Apr 23, 2000
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What's with all the roses? All you're doing is depressing the guy even further. How about some positive comments instead?
 

Armitage

Banned
Feb 23, 2001
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Good luck OP - I do have some experience in this area, though 25 years ago. I'm sure treatment for this sort of thing has come a long way since then.
 

allisolm

Elite Member
Administrator
Jan 2, 2001
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I am so sorry for what your family is having to go through and please know that we are all pulling for a favorable outcome.

It is a shame that, in real life, there isn't a Dr. House stashed in the closet of every hospital who can diagnose a rare disease from a hangnail and cure it all in an hour. It is so frustrating for a loved one to have something that isn't easily recognized and treated. I went through it with my own mother and it's no fun.

My thoughts are with you.