I was gonna do DNA analysis but the Terms of Service scare me.

[shortylickens]

https://www.23andme.com/about/tos/

The way I read it they can give away or sell my DNA info. Is that how you guys see it?

 

[IBMJunkman]

Now days anything you give up can and will be monetized. Whether it remains personally identifiable is up for grabs.

 

[lxskllr]

Regardless of what any TOS says, they can be changed with a pen in a few minutes. Data a company can't use is data they don't have in the first place.

 

[Thebobo]

Ancestry claims they cant and dont unless you agree. I just did it with ancestry and frankly I just didn't care. As I posted in another thread compared to my personal non-health info, financial, Passwords, SS number ect there isn't much if anything they do with my DNA information that I care about. I just don't see the threat. Maybe in 20ish years from now.

Ancestry

• First, we very clearly state that AncestryDNA does not “claim ownership rights in the DNA that is submitted for testing.” You own your DNA; this sentence helps make it clear that nothing we do takes, or has ever taken, that ownership from you.
  
  
• Second, we’re clear that because you are owner of your DNA, we need you to grant us a license to your data so that we can provide our products and services to you and our other users, as well as develop new products and services. You can revoke this right at any time by requesting we delete your data or your account.
  
  
• Third, we explicitly state that we will not share your genetic data with employers, insurance providers or third party marketers without first getting your consent. We already follow this procedure, but this language makes our commitment to you explicit.

https://blogs.ancestry.com/ancestry/2017/05/21/setting-the-record-straight-ancestry-and-your-dna/

 

[cbrunny]

so? you don't even actually know what dna is. what difference does it actually make if someone else sells it to someone else?

 

[brianmanahan]

basically GATTACA

 

[Thebobo]

so? you don't even actually know what dna is. what difference does it actually make if someone else sells it to someone else?

I guess that was directed at me? I'm not a scientist or researcher but I'm not totally ignorant, what are you claiming here? That I don't know what difference if someone sells it to someone else? Well according to the agreement I signed they can't without my permission, which I declined to do. Now if they did it anyway then they would be in violation of the agreement and one could take them to court. But who would they sell it to that could use it anyway? And again for me am on the downwind leg and I just dont give a rats ass. I wanted to see my heritage and I did, I am happy with my purchase. If I was 20 maybe I would be more concerned.

Won't be long from now before you will be able to do you own DNA sequencing at home that these companies do.

https://www.bento.bio/

 

[BarkingGhostar]

I'm surprised no one has offered an anonymous version of DNA testing.

 

[Brainonska511]

My main issue with DNA testing is around the issue of finding out you have some substantial risk of developing or will develop a disease, which could make it incredibly difficult to obtain disability or life insurance. There are no laws which protect you from genetic discrimination in those forms of insurance.

 

[clamum]

Ancestry claims they cant and dont unless you agree. I just did it with ancestry and frankly I just didn't care. As I posted in another thread compared to my personal non-health info, financial, Passwords, SS number ect there isn't much if anything they do with my DNA information that I care about. I just don't see the threat. Maybe in 20ish years from now.

Yep that's pretty much my opinion as well. I don't know what they EXACTLY mean by "DNA" either but in the grand scheme of things, I ain't too worried about it. Maybe in a couple decades more down the road I'll have wished I didn't agree, but I have a feeling that won't be the case.

 

[ImpulsE69]

My main issue with DNA testing is around the issue of finding out you have some substantial risk of developing or will develop a disease, which could make it incredibly difficult to obtain disability or life insurance. There are no laws which protect you from genetic discrimination in those forms of insurance.

Well at some point, it will be a prerequisite.

 

[Mayne]

Are you Kim Un Ill? or whatever the fuck that guys name is...he carrys around a personal toilet and has people dispose of his shit because he don't want people access to his crap. thats pretty messed up thinking.

 

[snoopy7548]

Mayne, you should send in a sample of your chili and see what sort of DNA it has.

 

[Red Squirrel]

I kinda want to do it too, but I too am worried about the privacy aspect . Companies now days are pretty much salivating over the idea of selling off every bit of your identity. Supposedly they have to destroy the data at request, but how do you know if they really did it when you ask? Or that they didn't sell it immediately before you asked.

I suppose one thing you CAN do is do it as a group of people like 10+ people, and just put each other's DNA in different vials and keep track. So when the results come in they will be for your partner and not for you. This will poison any database that is used to store your personal info since it will be all wrong. This is probably the key to all this data harvesting now days, to try to poison it with false data.

 

[Hayabusa Rider]

My main issue with DNA testing is around the issue of finding out you have some substantial risk of developing or will develop a disease, which could make it incredibly difficult to obtain disability or life insurance. There are no laws which protect you from genetic discrimination in those forms of insurance.

It can also land you in a very expensive legal mess even if it isn't your DNA.

https://www.ajc.com/news/national/g...website-officials-say/N27nonZCBihxxfaHErc16I/

 

[highland145]

It can also land you in a very expensive legal mess even if it isn't your DNA.

https://www.ajc.com/news/national/g...website-officials-say/N27nonZCBihxxfaHErc16I/

And another GEDmatch find. They take voluntary uploads and is open source. That's what caught the DeAngelo.

http://www.foxnews.com/us/2018/06/1...le-area-1987-double-homicide-through-dna.html

 

[dullard]

https://www.23andme.com/about/tos/

The way I read it they can give away or sell my DNA info. Is that how you guys see it?

After costs, 23andme makes next to nothing on their tests. Even if there were no expenses at all, they'd still be in the hole. They have about 2 million customers so far, at $69/test would bring in $138 million. But, they've already raised about $250 million from investors. How are they going to bring in what investors want (such as a 10x return on their investments)? Big data.

They are open about how they make their money: by selling your DNA information. 23andme claims that the average user is entered into 230 genetic studies. Here is one example of a study: http://journals.plos.org/plosgenetics/article?id=10.1371/journal.pgen.1000993

More info:
https://gizmodo.com/23andme-is-selling-your-data-but-not-how-you-think-1794340474

More info:
https://www.fastcompany.com/3018598...u-inside-23andme-founder-anne-wojcickis-dna-r

“The long game here is not to make money selling kits...” says Patrick Chung, a 23andMe board member and partner at the venture-capital firm NEA. “Once you have the data...become the Google of personalized health care.” Genetic data on a massive scale is likely to be an extremely valuable commodity to pharmaceutical companies, hospitals, and even governments. This is where the real growth potential is.

 

[dullard]

Third, we explicitly state that we will not share your genetic data with employers, insurance providers or third party marketers without first getting your consent. We already follow this procedure, but this language makes our commitment to you explicit.

My complaint with that is that 3rd party marketers aren't where the money is at. The money comes from drug companies and equipment manufacturers who use your DNA data to develop their products. Their statement stays mum about 3rd party non-marketing uses.

 

[Oyeve]

I just sent in the Ancestry one. I just wanna know where I am from, I don;t want to know if I am gonna die in three years.

 

[shortylickens]

I find it interesting a man named Dullard had the most informative post.

 

[Thebobo]

You just don't want to find out your not really Human but half cat!

 

[Thebobo]

I'm surprised no one has offered an anonymous version of DNA testing.

I'm sure you could do that with a different name and somehow could get a payment to them. I wanted to send in My cat's saliva to see if they caught it. If I had more money or it was cheaper.

 

[BarkingGhostar]

I guess one can always create a fake identity and then submit.

 

[TheVrolok]

My main issue with DNA testing is around the issue of finding out you have some substantial risk of developing or will develop a disease, which could make it incredibly difficult to obtain disability or life insurance. There are no laws which protect you from genetic discrimination in those forms of insurance.

I do have privacy concerns, but this is absolutely a significant reason I would not have it done.

 

[Brainonska511]

I do have privacy concerns, but this is absolutely a significant reason I would not have it done.

The privacy issues are also a concern for me, but the financial stakes are higher than most people realize.