I have been diagnosed with alopecia

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Baked

Lifer
Dec 28, 2004
36,052
17
81
Wear a wig.

Originally posted by: amdhunter
I don't care what you have.

I speak wholeheartedly for ATOT when I ask...

Pics??

It's been posted many times. And you're not even a noob. For shame.
 

RKS

Diamond Member
Oct 9, 1999
6,824
3
81
Originally posted by: little elvis
I suffer from localized alopecia areata which is limited to my beard area and the sides of my scalp (right now I have a quarter sized patch on my scalp near my left ear), only a single effected area at a time, up til now I've never had multiple patches. Early on, regrowth would usually happen with in 2 to 3 months, but now, regrowth typically takes 6 to 8 months.

When I was first diagnosed, my doctor recommended some corticosteroids cream, however, it was his belief/opinion that these creams really do not effect the speed at which regrowth would occur and whether or not regrowth would occur at all. Which in my case appears to be the true.

That being said, it was about 15 years ago that I was first diagnosed, it would be interesting to see if any improved treatments have been developed.

Steroidal cream was also prescribed for me just a few months ago and the dermatologist was not sure if it would work. I decided to let it just be and forego any medication. I actually wish it was all over my face so I would never have to shave again.
 

Sheepathon

Diamond Member
Oct 22, 2003
6,093
7
81
Have patience, and don't try anything crazy yet.

From wiki:

Stem cells and dermal papilla cells have been discovered in hair follicles and some researchers predict research on these follicular cells may lead to successes in treating baldness through hair multiplication (HM), also called hair cloning.
HM is being developed by two independent companies: ARI (Aderans Research Institute, a Japanese owned company in the USA) and Intercytex, a company in Manchester (UK).
In 2008, Intercytex announced positive results of a Phase II trial for a form of cloning hair follicles from the back of the neck, multiplying them and then reimplanting the cells into the scalp. The initial testing resulted in at least two thirds of male patients regrowing hair. As of 2009, the company estimates this treatment will take "a number of years to complete" Phase III trials before it can go to market.

I know it references male patients only, but I don't see why the techniques used couldn't work for female scalp and hair as well.
 

MrsBugi

Platinum Member
Aug 19, 2005
2,481
5
0
Originally posted by: nod218
A little of the subject, but I was wondering if you're chinese. The ginger-soak brandy cure your mother was talking is exactly what my mom uses to cure anything. Sore back, sprain ankle, anything that didn't involve broken bones or cuts the alcohol soak ginger was brought out. BTW, I am sorry to hear about this, just cherish the fact that you have supportive friends and family.

Yes, I am Chinese. My mom is mixing up a batch of ginger and brandy for me to use when I go home to visit them at the end of the month. Her intentions are good and who knows, it's not invasive and if it miraculously works, it works! I am very grateful to have such supportive friends and family, curious Eastern remedies and all. :)
 

MrsBugi

Platinum Member
Aug 19, 2005
2,481
5
0
Originally posted by: Sheepathon
Have patience, and don't try anything crazy yet.

From wiki:

Stem cells and dermal papilla cells have been discovered in hair follicles and some researchers predict research on these follicular cells may lead to successes in treating baldness through hair multiplication (HM), also called hair cloning.
HM is being developed by two independent companies: ARI (Aderans Research Institute, a Japanese owned company in the USA) and Intercytex, a company in Manchester (UK).
In 2008, Intercytex announced positive results of a Phase II trial for a form of cloning hair follicles from the back of the neck, multiplying them and then reimplanting the cells into the scalp. The initial testing resulted in at least two thirds of male patients regrowing hair. As of 2009, the company estimates this treatment will take "a number of years to complete" Phase III trials before it can go to market.

I know it references male patients only, but I don't see why the techniques used couldn't work for female scalp and hair as well.

That's fascinating, I wonder if "a number of years" = 10, 20, 30...? With alopecia I'm not sure transplanted hair would be able to stay in though, it may just fall out again which is why they recommended against using Rogaine, etc. Good info though, it'll be interesting to see where things go as technology continues to improve...
 

lxskllr

No Lifer
Nov 30, 2004
59,408
9,930
126
I'd go for the shaved head look. Flaunt it, you don't have hair, because you don't want it ;^) It can be a dramatic look on a woman, and much more comfortable than wearing a wig.
 

maziwanka

Lifer
Jul 4, 2000
10,415
1
0
also, im really sorry tohear about your situation OP, but im glad to hear you have a lot of good support around you. what you're going through doesn't detract from who you are (your intelligence, personality, etc.).
 

Blieb

Diamond Member
Apr 17, 2000
3,475
0
76
Originally posted by: MrsBugi
May I ask the age of your family friend with totalis? If I progress to totalis I can pencil my eyebrows in, they're thin right now but still there. I really like and appreciate your reframe, I know there are positives but they're kinda hard to celebrate right. In due time I'm sure...

D'oh, sorry, just now checking back.

He was just starting college, so around 18yo at the time. Not sure when it started for him.

 

rudder

Lifer
Nov 9, 2000
19,441
86
91
Originally posted by: MrsBugi
Originally posted by: slayer202
that's rough for a woman. would be much easier for a man

CV

Agreed. :( Ever since the doctor's diagnosis I've been hyperaware of the hair on everyone's heads. So many men with bald patches or thinning hair and people don't think twice about it. A womanwith bald patches or thinning hair and there are often exchanged looks, looks of disgust, or a much more insensitive reaction.

Well there are insenstive pricks everywhere. They are insensitive to obesity, skin disorders, disabilities, etc etc. Just dont give them the satisfaction. You know who you are and don't need their approval.
 

Axon

Platinum Member
Sep 25, 2003
2,541
1
76
hairlosstalk.com

Good hairloss site, though you should ignore the whining of the MPB sufferers on the forums - to hear it from those guys, their lives are over. They're wrong, of course. Otherwise it has solid information.
 

yllus

Elite Member & Lifer
Aug 20, 2000
20,577
432
126
I have an acquaintance (female) who suffers from this - she's completely bald. She overcomes the confidence issue by having a really incredible body. I don't think most men even look at her head. :p
 
Nov 7, 2000
16,403
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honestly, the people around you, the people you see everyday, the ones that care for you and you care about... will not even notice it or give it a second thought. they certainly wont treat you any differently or make it into a bigger deal than it is. sadly, you will probably get looks from strangers, but just remember thats all they are (looks and strangers), and you shouldn't really waste time worrying about what strangers think. from my understanding, there really isnt anything you did to cause it, or can do to cause it to go away, so that should limit some frustration. be glad you did not have to grow up with it, surely would be much worse trying to deal with it then than as an adult
 

dman

Diamond Member
Nov 2, 1999
9,110
0
76
I assume you were tested for other possible causes, thyroid, gi tract, deficiencies, food alergies, etc? Looks like it's one of those auto-immune diseases which don't have a lot of medical cures--so you have to do some of your own research and possibly look into alternative treatments, or ride it out. Sorry, hope it passes soon.



 

queenrobot

Platinum Member
Aug 20, 2007
2,049
0
0
My cousin has totalis, I honestly didn't know at all. She is gorgeous, womanly and seems to be very confident and happy.
 

gorcorps

aka Brandon
Jul 18, 2004
30,739
454
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Wait... are there any more adverse effects other than hair loss? I don't want to sound insensitive, but tears over just hair loss? Really? Tears over hair loss because of cancer or something is perfectly common, but when it's just hair loss? I'm sorry but there are some horrible things out there, and this is not one of them.
 

RKS

Diamond Member
Oct 9, 1999
6,824
3
81
Originally posted by: HardcoreRobot
honestly, the people around you, the people you see everyday, the ones that care for you and you care about... will not even notice it or give it a second thought. they certainly wont treat you any differently or make it into a bigger deal than it is. sadly, you will probably get looks from strangers, but just remember thats all they are (looks and strangers), and you shouldn't really waste time worrying about what strangers think. from my understanding, there really isnt anything you did to cause it, or can do to cause it to go away, so that should limit some frustration. be glad you did not have to grow up with it, surely would be much worse trying to deal with it then than as an adult

While I don't care about my condition, others do. My brother asked me if I was contagious, my boss brought me into his office to verify I didn't have ringworm, my wife pointed, laughed, and told me I was getting another spot in the back of my head. Only my two boys didn't bring it up. I just wish it was more evely spread on my face so I wouldn't have to shave.
 

nerdress

Senior member
Jun 5, 2009
764
1
0
MrsBugi, my cousin has that. I have a very small form of it on my head that I hide through tricks I've learned in hairstyles. She's 20 years old, she was diagnosed I think 5 years ago. Not to sound mean, but her parents never took her to see a therapist and as a result, has a felony conviction and is pregnant with a son, and she can't even see the father (due to his felony convictions and her being on probation). She used to be such a sweet girl..and after she lost her hair she sort of lost her mind.

Hair is just hair; it's not what's on the outside that counts but the inside, and anyone who tells you differently can go proper fuck themselves off into the sunset. While it might seem harsh, it would be a really good idea to see a therapist just to talk about it with someone who has an objective view; sometimes just talking to your friends isn't enough. I wish I had been there for my cousin though :(

/hug
 

Nik

Lifer
Jun 5, 2006
16,101
3
56
Originally posted by: MrsBugi
Lots of tears. Lots of confusion. Lots of frustration, shame and embarrassment.

Tears? Confusion? Frustration, shame, and embarassment?

It's fucking HAIR, lady. :roll:
 

lxskllr

No Lifer
Nov 30, 2004
59,408
9,930
126
Originally posted by: Nik
Originally posted by: MrsBugi
Lots of tears. Lots of confusion. Lots of frustration, shame and embarrassment.

Tears? Confusion? Frustration, shame, and embarassment?

It's fucking HAIR, lady. :roll:

Hair is very important to females(and many males). I guess you'd tell a woman that got breast removed to just suck it up, it's only a lump of fat? :^S
 

nerdress

Senior member
Jun 5, 2009
764
1
0
Originally posted by: Nik
Originally posted by: MrsBugi
Lots of tears. Lots of confusion. Lots of frustration, shame and embarrassment.

Tears? Confusion? Frustration, shame, and embarassment?

It's fucking HAIR, lady. :roll:

Inappropriate and unnecessary. Let me just remove one of your balls--it's just one BALL, sheesh! You have another! :roll:
 

Nik

Lifer
Jun 5, 2006
16,101
3
56
Originally posted by: lxskllr
Originally posted by: Nik
Originally posted by: MrsBugi
Lots of tears. Lots of confusion. Lots of frustration, shame and embarrassment.

Tears? Confusion? Frustration, shame, and embarassment?

It's fucking HAIR, lady. :roll:

Hair is very important to females(and many males). I guess you'd tell a woman that got breast removed to just suck it up, it's only a lump of fat? :^S

It is, but many women flip out and can't handle reality. They need something physical to justify their existance or to justify some part of their being or their life or something.

Edit: I have a very close family friend who's had a double massectomy and is a cancer survivor. A real woman, to be sure.

I know a guy who had white hair by 16. He's not much younger than I am and has a very gray/old look to him.

I'm going bald, myself.

There are people who lose their hair to chemo and many of them are emotionally strong enough to get through it just fine.

Reality check. It's just hair. It doesn't define you. At all. And neither do tits. If they do, you have other more deeply seeded issues to deal with than just going bald. I can understand being a little sad for a little while, but crying and frustration and shame and embarassment? Really?
 

Nik

Lifer
Jun 5, 2006
16,101
3
56
Originally posted by: nerdress
Originally posted by: Nik
Originally posted by: MrsBugi
Lots of tears. Lots of confusion. Lots of frustration, shame and embarrassment.

Tears? Confusion? Frustration, shame, and embarassment?

It's fucking HAIR, lady. :roll:

Inappropriate and unnecessary. Let me just remove one of your balls--it's just one BALL, sheesh! You have another! :roll:

Having 2, 1, or no balls doesn't define me. If one fell off or I lost it sliding down the bannister or something stupid, big whoop. Life goes on.

Besides, you have to consider your audience. AT has been nursing this woman's posts (and lies and drama) for years. Some of us are tired of the sensationalism. It's. Just. Hair.