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HOLY CRAP! I REALLY AM DEAF!!!! or not

eflat

Platinum Member
EDIT:

I see there is renewed interest in this thread. Obviously I've learned a lot in the past couple of months (like the fact that I was never truly deaf) and would be happy to share it.

The best explanation I have been given, and the one I am leaning towards, is that, as a child and up through the time you read this, I had been functioning as a poster-boy aspergers/high functioning autistic.

For whatever reason, a combination of growing older and treating chroinc allergies seems to be causing me to lose some of my autistic traits.

That is to say, I can "hear" better, not because my ear was obstructed, but because the filtering system is my brain is functioning differently.

If you do some research on autism, you will see in a way it is almost like deafness - in that you just don't pay attention to what people are saying and react like normal people do.

Autism runs strong in my blood, and if you look hard you can see my mother still has a bit of it, so it is not such a leap of faith to realize that I had and still have it so some extent. Indeed I have cousins who are more textbook Aspergers/high functioning autistics.

So, two months later, in many ways it this is a whole new world for me. I have a much more keen ability to hear and, in a sense, see (I notice things I didn't before -- think the TV show Monk)

My newfound ability to express myself through art is the most surprising -- almost overnight I have become a much better musician and photographer. Yet it's not that surprising because I always knew I had it.

There are a lot of books out there by recoving autistics who have stories not unlike my own. I'm actually writing a book on my experience (although with things still changing it's a few years from completion. I've got a couple hundred pages down, though. Not particularly looking forwarding to editing it. heh.

As for the "Landau Klefner" syndrom - it is basically a rare form of autism and not unlike what I experienced. In other words, same symptoms, but different cause.

That said, there are a couple specialists dealing with autism (psychiatrists and psychologists) that have taken a keen interest in me. So I imagine, if I continue to function at the level that I have the last few months, that you will hear more about this.


The original thread, for your amusement, my embarrassment and postarity's sake


So many of you may remember that thread about me being deaf and hearing for the first time.

I went and got a hearing test and they said nope it's fine. I said no way.

To make a long story short they won and put me on antipsychotics and wrote it off as a dillusion. But that syndrom fits me to a T.

It went away between 3-7 (suddenlty got quiet)
Gets better with stereoids
Seizures

Oh yeah, and I can hear

ANd I RECORDED MYSELF LEARNING WHAT IT WAS LIKE TO HEAR.

Once I have the tape I bet I can convince any doctor. Only 160 have been disagnosed with this and I bet you I am about to be 161!!!!

 
so is it 160 or 161? i think you're delusional and need antipsychotics 😉
can you hear me now?
 
This is weird.

As far as I can tell... we're supposed to be congratulating you for having an incredibly obscure disease?
 
Originally posted by: CitizenDoug
I have Landau Kleffner Syndrome. If diagnosed, I'll be #160 in the world!

You either have it or you don't. How can you have it, and then say "if diagnosed"? 😕
 
How can you pass a hearing test if you can't hear?

Is it something like :

Tester: "Can you hear this?"
You: "No."
Tester (under breath): "Liar?"
 
Originally posted by: Evadman
Originally posted by: Dubb
Originally posted by: Evadman
its psychosomatic. You need lobotomy. Ill get a saw.
A lobotomy?! that's not what a real doctor would say!
<--- Not Doctor.


jeebus, you can quote calvin's line but not recognize suzie's? And you call yourself elite.

fwiw, the correct response is:

Yeah? who's wearing the stehoscope, you or me? here's a mallet. Do you want anesthesia?
 
Originally posted by: Dubb
Originally posted by: Evadman
Originally posted by: Dubb
Originally posted by: Evadman
its psychosomatic. You need lobotomy. Ill get a saw.
A lobotomy?! that's not what a real doctor would say!
<--- Not Doctor.


jeebus, you can quote calvin's line but not recognize suzie's? And you call yourself elite.

fwiw, the correct response is:

Yeah? who's wearing the stehoscope, you or me? here's a mallet. Do you want anesthesia?

Well, I was gonna skip to the end and strip to my underpants and play tarzan, but I figured tha would be outa character. 😉

BTW: That's not what that's for!
 
Originally posted by: agnitrate
How can you pass a hearing test if you can't hear?

Is it something like :

Tester: "Can you hear this?"
You: "No."
Tester (under breath): "Liar?"

lmfao
 
Originally posted by: CitizenDoug
So many of you may remember that thread about me being deaf and hearing for the first time.

I went and got a hearing test and they said nope it's fine. I said no way.

To make a long story short they won and put me on antipsychotics and wrote it off as a dillusion. But that syndrom fits me to a T.

It went away between 3-7 (suddenlty got quiet)
Gets better with stereoids
Seizures

Oh yeah, and I can hear

ANd I RECORDED MYSELF LEARNING WHAT IT WAS LIKE TO HEAR.

Once I have the tape I bet I can convince any doctor. Only 160 have been disagnosed with this and I bet you I am about to be 161!!!!

EDIT: THe disease is curable. I'm deaf, but register as being able to hear on hearing tests. It's a brain disorder. In the near future, I may have my hearing back. Read the thread about being able to hear to understand.

link to thread? in o/p
 
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