- Nov 13, 2001
- 15,362
- 416
- 126
OK years ago I got injured at work, I herniated two of my lower discs, I also have spinal degragation (SP), where the bones around my effect injury is decinergrating.
One of the specialists I saw at the time for my back years ago, now coming back to me because Im getting prepaired to go re-apply for SSI, is he said I had Spina bifida, in the area of my injury. Well I looked this up and it seems everything it describes, weekness, loss of feeling in my lower extremities, can be caused by this other disability and I am starting to feel as though I may have been misdiagnosed or imporoperly where as it is a combination of the two, my injury and this, that has caused my problems. Ontop of this I read that Spina bifida can cause more fluid to the brain, well since the accident and more recently, I been suffering from hellacious migraines and taking 4 pills to knock it out, not your normal migrane or pain meds because they dont do jack for my headach.
So I am looking for more information this as I can, from other sufferers of the disability, to see if indeed this is what is causing my migranes and should get another opinion on this because it can become a problem leading to death, or paralysis of my lower body if it goes untreated, and considering my bones are decenergrating around the Spina bifida, I should do something about this very soon, I think.
So any information you may have or point me to that may prove or disprove my findings, I would love to hear.
My symptoms are constant pain in my lower back all the time near the end of my spine right around the hips, shooting pain at times that travels down my legs. At times I dont feel any pain, once I try to do something within 2-5 minutes, I start to hurt really bad, find it hard to stand, my legs want to give out, massive pain in my lower back, and need to sit. After sitting for a few hours the pain subsides on its own only to return if I try to go finish what I was doing, something simple like dishes or making the bed. Walking forget it, after about a block I find it very hard to move sometimes, my legs just dont want to do what i am asking them to do and struggle to walk anywhere or any further due to pain and just find it hard to move.
As for my headach, one side all the time in the back of my head, been on all kinds of pain pills from vicoden to horse traqulizers and nothing worked, im on Amitriptylin, midrin, maxalt, and zonisamide right now and these have given my the closest thing to being headach free in many months. Still there, dull pain and pressure, but not like it used to to a point I couldnt function, was twitching all over the place, and couldnt think.
So those of you that have/know/studied/or what ever about Spina bifida, does it sound like this is my major problem, and yes I have addressed my doctor on this, because my injury was a workers comp injury my insurance will not pay for a xray, I have no money to do it on my own, so without knowing for sure to look into this being my major cause I dont wish to go throwing money out there finding out its not a problem. Workers comp also settled on me so they are not going to pay for it as well. Just looking to see if Spina bifida, is my problem here and catch it before it gets much worse for me if it is.
One of the specialists I saw at the time for my back years ago, now coming back to me because Im getting prepaired to go re-apply for SSI, is he said I had Spina bifida, in the area of my injury. Well I looked this up and it seems everything it describes, weekness, loss of feeling in my lower extremities, can be caused by this other disability and I am starting to feel as though I may have been misdiagnosed or imporoperly where as it is a combination of the two, my injury and this, that has caused my problems. Ontop of this I read that Spina bifida can cause more fluid to the brain, well since the accident and more recently, I been suffering from hellacious migraines and taking 4 pills to knock it out, not your normal migrane or pain meds because they dont do jack for my headach.
So I am looking for more information this as I can, from other sufferers of the disability, to see if indeed this is what is causing my migranes and should get another opinion on this because it can become a problem leading to death, or paralysis of my lower body if it goes untreated, and considering my bones are decenergrating around the Spina bifida, I should do something about this very soon, I think.
So any information you may have or point me to that may prove or disprove my findings, I would love to hear.
My symptoms are constant pain in my lower back all the time near the end of my spine right around the hips, shooting pain at times that travels down my legs. At times I dont feel any pain, once I try to do something within 2-5 minutes, I start to hurt really bad, find it hard to stand, my legs want to give out, massive pain in my lower back, and need to sit. After sitting for a few hours the pain subsides on its own only to return if I try to go finish what I was doing, something simple like dishes or making the bed. Walking forget it, after about a block I find it very hard to move sometimes, my legs just dont want to do what i am asking them to do and struggle to walk anywhere or any further due to pain and just find it hard to move.
As for my headach, one side all the time in the back of my head, been on all kinds of pain pills from vicoden to horse traqulizers and nothing worked, im on Amitriptylin, midrin, maxalt, and zonisamide right now and these have given my the closest thing to being headach free in many months. Still there, dull pain and pressure, but not like it used to to a point I couldnt function, was twitching all over the place, and couldnt think.
So those of you that have/know/studied/or what ever about Spina bifida, does it sound like this is my major problem, and yes I have addressed my doctor on this, because my injury was a workers comp injury my insurance will not pay for a xray, I have no money to do it on my own, so without knowing for sure to look into this being my major cause I dont wish to go throwing money out there finding out its not a problem. Workers comp also settled on me so they are not going to pay for it as well. Just looking to see if Spina bifida, is my problem here and catch it before it gets much worse for me if it is.
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