Does anyone here know anything about Spina bifida

funboy6942

Lifer
Nov 13, 2001
15,295
391
126
OK years ago I got injured at work, I herniated two of my lower discs, I also have spinal degragation (SP), where the bones around my effect injury is decinergrating.

One of the specialists I saw at the time for my back years ago, now coming back to me because Im getting prepaired to go re-apply for SSI, is he said I had Spina bifida, in the area of my injury. Well I looked this up and it seems everything it describes, weekness, loss of feeling in my lower extremities, can be caused by this other disability and I am starting to feel as though I may have been misdiagnosed or imporoperly where as it is a combination of the two, my injury and this, that has caused my problems. Ontop of this I read that Spina bifida can cause more fluid to the brain, well since the accident and more recently, I been suffering from hellacious migraines and taking 4 pills to knock it out, not your normal migrane or pain meds because they dont do jack for my headach.

So I am looking for more information this as I can, from other sufferers of the disability, to see if indeed this is what is causing my migranes and should get another opinion on this because it can become a problem leading to death, or paralysis of my lower body if it goes untreated, and considering my bones are decenergrating around the Spina bifida, I should do something about this very soon, I think.

So any information you may have or point me to that may prove or disprove my findings, I would love to hear.

My symptoms are constant pain in my lower back all the time near the end of my spine right around the hips, shooting pain at times that travels down my legs. At times I dont feel any pain, once I try to do something within 2-5 minutes, I start to hurt really bad, find it hard to stand, my legs want to give out, massive pain in my lower back, and need to sit. After sitting for a few hours the pain subsides on its own only to return if I try to go finish what I was doing, something simple like dishes or making the bed. Walking forget it, after about a block I find it very hard to move sometimes, my legs just dont want to do what i am asking them to do and struggle to walk anywhere or any further due to pain and just find it hard to move.

As for my headach, one side all the time in the back of my head, been on all kinds of pain pills from vicoden to horse traqulizers and nothing worked, im on Amitriptylin, midrin, maxalt, and zonisamide right now and these have given my the closest thing to being headach free in many months. Still there, dull pain and pressure, but not like it used to to a point I couldnt function, was twitching all over the place, and couldnt think.

So those of you that have/know/studied/or what ever about Spina bifida, does it sound like this is my major problem, and yes I have addressed my doctor on this, because my injury was a workers comp injury my insurance will not pay for a xray, I have no money to do it on my own, so without knowing for sure to look into this being my major cause I dont wish to go throwing money out there finding out its not a problem. Workers comp also settled on me so they are not going to pay for it as well. Just looking to see if Spina bifida, is my problem here and catch it before it gets much worse for me if it is.
 

funboy6942

Lifer
Nov 13, 2001
15,295
391
126
Originally posted by: IcebergSlim
<<<<< Doctors Office

Yeah, I made a appointment to see my doctor, again, and see if there is anything that can be done to get a xray of my back somehow some way and not be considered a part of my workers comp injury.
 

Kev

Lifer
Dec 17, 2001
16,367
4
81
I have spina bifida and I don't have anything close to the pain you are describing. I do have a constant nagging pain in my back and I can't sit straight or stand straight for any long period of time or else it starts to hurt, but that is pretty much as bad as it gets. No migraines or shooting pains down my leg. Spina bifida IIRC is something you're born with which gives me the impression that your problems stem from your other injury. But seriously go see a doctor, because I'm just a random internet guy and I am probably completely wrong.
 

Damn Dirty Ape

Diamond Member
Nov 1, 1999
3,310
0
76
I'm thinking the same thing, I always understood it was present at birth. A next door neighbor years ago had it, she was 8-9 and had it from birth. She was very bad with it and could not even walk. Wheelchair pretty much then and still is.

Originally posted by: Kev
I have spina bifida and I don't have anything close to the pain you are describing. I do have a constant nagging pain in my back and I can't sit straight or stand straight for any long period of time or else it starts to hurt, but that is pretty much as bad as it gets. No migraines or shooting pains down my leg. Spina bifida IIRC is something you're born with which gives me the impression that your problems stem from your other injury. But seriously go see a doctor, because I'm just a random internet guy and I am probably completely wrong.

 

funboy6942

Lifer
Nov 13, 2001
15,295
391
126
Originally posted by: Kev
I have spina bifida and I don't have anything close to the pain you are describing. I do have a constant nagging pain in my back and I can't sit straight or stand straight for any long period of time or else it starts to hurt, but that is pretty much as bad as it gets. No migraines or shooting pains down my leg. Spina bifida IIRC is something you're born with which gives me the impression that your problems stem from your other injury. But seriously go see a doctor, because I'm just a random internet guy and I am probably completely wrong.

Well the specialist I saw4 years ago when I first got hurt said I had it in the injury location and never knew about it. Ever since I could remember, my lower back at times would go out for no reason. could lift up engine blocks, transmissions, but bend over to pick up a penny and I would be able to stand straight up for weeks with out my legs wanting to go out. I literally had to walk around the house bent over, once I tried to stand straight I would feel a pinch and my legs would give out and hit the floor. I grew up poor as a child so we never had insurance and never saw a doctor for it. My parents would just let me rest and it would go away on its own so we didnt think to much into it. Till now, neither did I but when I came across some paperwork and it jogged my mind about what the one doct said about me having it I decided to look it up today, Im glad I did.

I too since the injury cannot sit straight or stand straight for any length of time. And again at times when the pain hits I have to walk bent over and cannot stand straight. If I go sit it goes away after a few or if I am sitting and the one position starts to bother me I lean over in another one the pain will go away. But since the doctor years ago said I had it in my same spot as my injury, and all my doctors I seen (4 regular 3 back) said my bones are starting to degenerate, and I am beginning to wonder if it is effecting the spinal problem and causing me to have too much fluid and hence why I was having my migraines. It start out as 1-2 a month, then 1-2 a week, and now it is all the time. I had test done of my head and they cannot find a thing up there (haha other then my brain), but I am still on welfare and the doctors are not the best and they dont care for you as a person just a $$ sign when your on the system. Also they dont like to treat you because they dont make anything on it, so as long as they can see me and feed me with pills they make money, anything other then that, Im not worth it in their eyes to care for, for they wont make enough off the insures I have.

So I have a appointment for the 15th, I need to educate myself with this as much as I can so I can take it to my doctor with my findings in hopes he will listen, see that it makes sense and it can be the reason for my headachs all the time and why they couldnt find anything in my head that would be causing it, and hopefully find a way they can take a xray of my back that wouldnt be considered a part of my workers comp injury.

Hence why I need as much information on it as I can for I have two problems in the same area. If it is the spinal thing more then the herniated discs causing my headachs and pain I can get treatment for it, hopefully, make my headachs go away, my back paid subside, be hopefully move around again and go get a job again and not have to be on welfare or go on SSI at the end of the year. But right now in my condition I cannot work, no one will hire me, I cnat do a damn thing, hell it takes me 5 hours to wash a sink full of dishes, and if I can find out this is my problem and leed some sort of a better life because they can operate on this lessoning my pain and allowing me to get around better, and losing my headachs I have all the time, damnit, if I have to educate my doctor because he wont then so be it.

So please anymore people out there with the disability I want to know your symptoms, what you can and cannot do, I have to see if there is a similarity with what you have with what I have, granted I have a little bit more in that area, but so far even this guy mentioned something that I have a problem with.