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Anyone here been through chemo?

MangoTBG

Diamond Member
Apr 28, 2003
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Not too long ago (Early March) I was diagnosed with testicular cancer. I had surgery durring spring break to remove the bad boy (and place a prostetic...sweet!). Since then they found a mass in my abdomin and at first they wanted to do surgery, but now with a new doctor up here in Wisconsin (first doctor was in Tampa where I go to school) he wants to do chemo first.

I wanted to see if anyone in ATOT has gone through this and might be able to lend any of their experiences with it. If it's too personal to post, feel free to pm or email me.

Or if you know of any good questions I should be asking my doctor, please let me know. I haven't met with the doctor who will be administoring the chemotherapy, yet. That's next Tuesday. Also, any links that you might have that I could add to my collection to educate myself would be awesome!

Thanks in advance!
 

GTaudiophile

Lifer
Oct 24, 2000
29,767
33
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May I ask, how old are you?

A friend of mine recently went through it trying to cure breast cancer. It's a rough experience but it saved her.

I wish you peace and strength as you work through this situation.
 
L

Lola

Wow... Best wishes to you.
I have not personally gone through it, but i was there with my mom when she had it.

I know you can(probably already have) check out cancer.org for a lot of great info. I would try and find some support groups in your area as they are always very helpful in what you should ask your dr. , what you can expect to experience, etc.

I know that not all folks lose their hair, and there are new meds that you can take that will help with tiredness and sickness afterwards.


i wish i had more info for you, but best wishes for a very positive outcome.
Just so you know, my mom is fully covered and in remission.

:heart:
 

Mermaidman

Diamond Member
Sep 4, 2003
7,987
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The side effects would depend on the type of chemo, and I'm sure the physician will educate you very thoroughly on what to expect. Do you know yet what you will be getting?

Generally speaking, drug companies try to improve not just the effectiveness of chemotherapy, but also to reduce the side effects, so sometimes the newer drugs are 'better.'

I wish you well on your recovery.
 

Feldenak

Lifer
Jan 31, 2003
14,090
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A very good friend of mine had testicular cancer and has suffered nothing further from it (except for the occasional ribbing about lacking a ball ;) ). I don't think they did chemo with him, I'm pretty sure he got radiation treatment.

Good luck with your battle. Testicular cancer is one of those very treatable cancers.
 

MangoTBG

Diamond Member
Apr 28, 2003
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Originally posted by: Mermaidman
The side effects would depend on the type of chemo, and I'm sure the physician will educate you very thoroughly on what to expect. Do you know yet what you will be getting?

Generally speaking, drug companies try to improve not just the effectiveness of chemotherapy, but also to reduce the side effects, so sometimes the newer drugs are 'better.'

I wish you well on your recovery.


I don't yet know any of the specifics. To give an idea of where I'm at these are the doctors I've seen

Urologist (preformed the initial surgery) > Genitourinary Onchologist (felt that surgery was best way to go) > insurance wanted me to go in network so they sent me up to wisconsin where my dad lives > Urological Onchologist (feels that surgery isn't the best option and wants to do chemo and he is sending me to whom he referred to as "chemotherapy specialist")
 

y2kc

Platinum Member
Sep 2, 2000
2,547
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My brother was diagnosed with lymphoma when he was 16. He was treated with chemo for 2 years (bi weekly). It wasn't pleasant. The spinal taps were painful and vomitting for 2 - 3 days afterwards was awful for him as well.

He didn't lose his hair (although it did change the texture of it) and he was unable to play any contact sports while under treatment (he was just too weak to do much of anything really).

My brother is 42 now, father of 4. He's been in remission for 24 years or so now. The chemo worked.

Best of luck to you.
 

walkur

Senior member
May 1, 2001
774
8
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My dad had chemo a year ago, it was only to eliminate the last cells that the surgery and radiotherapy couldn't get rid of.

Loss of hair and reduced stamina were his biggest problems.
No chemo therapy is the same.. Good luck

 

MangoTBG

Diamond Member
Apr 28, 2003
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Originally posted by: y2kc
He didn't lose his hair (although it did change the texture of it) and he was unable to play any contact sports while under treatment (he was just too weak to do much of anything really).

I think these kind of things are what I'm looking to find out. I was told this much, I would most likely have four cycles at about a month a piece. As I've alluded to I'm in school. It's summer break, now. I was very fortunate for the timing of my diagnosis as it happened two weeks before my spring break. Not missing classes was very very important to me, and still is. I was able to have the surgery and recover in time to start school back up the following week. Now I'm worried that I might not be in the condition to even start school this Fall semester. If I started tomorrow I'd be in my third or fourth cycle when school starts.


Edit: removed multiple "back up"s :)
 

y2kc

Platinum Member
Sep 2, 2000
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Originally posted by: MangoTBG
Originally posted by: y2kc
He didn't lose his hair (although it did change the texture of it) and he was unable to play any contact sports while under treatment (he was just too weak to do much of anything really).

I think these kind of things are what I'm looking to find out. I was told this much, I would most likely have four cycles at about a month a piece. As I've alluded to I'm in school. It's summer break, now. I was very fortunate for the timing of my diagnosis as it happened two weeks before my spring break. Not missing classes was very very important to me, and still is. I was able to have the surgery and recover in time to start school back up the following week. Now I'm worried that I might not be in the condition to even start school this Fall semester. If I started tomorrow I'd be in my third or fourth cycle when school starts.


Edit: removed multiple "back up"s :)

My bro was in HS at the time (very rigid schedule). His therapy was always on Fridays so he would leave school early and go to the hospital. By Monday he would be clear of most of the negative reactions to the drugs. The reaction to the therapy waned a bit after his body adjusted.
 

MangoTBG

Diamond Member
Apr 28, 2003
3,101
0
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Originally posted by: y2kc

My bro was in HS at the time (very rigid schedule). His therapy was always on Fridays so he would leave school early and go to the hospital. By Monday he would be clear of most of the negative reactions to the drugs. The reaction to the therapy waned a bit after his body adjusted.

Thank you, that definately puts my mind at ease.
 

OrByte

Diamond Member
Jul 21, 2000
9,303
144
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I had this cancer, and I beat it. You can do this.

check your PM.
 

oboeguy

Diamond Member
Dec 7, 1999
3,907
0
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Required reading

^^^^^^^ Lance Armstrong went through the same disease when he was young too. Best of luck to you and may you become a survivor like Lance!

Edit: spelling grr
 

MangoTBG

Diamond Member
Apr 28, 2003
3,101
0
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Originally posted by: oboeguy
Required reading

^^^^^^^ Lance Armstrong went through the same disease when he was young too. Best of luck to you and may you become a survivor like Lance!

Edit: spelling grr

This was the first thing I did. My mother came in town, this is after the surgery, and we had gone to the mall. She ended up picking this book up for me and trust me, it was a great read. It really helped comfort me as a lot of what he wrote about, I was going through as I was reading it. It was nice to hear the same vocabulary that the doctors were using. I'm not an avid reader by any means, but I finished that book within a week. I just couldn't let it go.

Something interesting that I'd like to mention is this: Back in November my dad surprised my brother and me with laptops (he also treated himself to one, too). Which ones you ask? HP Special Edition L2000. These are the LiveStrong laptops (great laptops with AMD Turion processor!). I can't help but believe that this was more than just a coincedence (sp?). I have worn my LiveStrong bracelet almost non stop since I had gotten the laptop (it came with one. $50 was also donotated to Lance Armstrong's foundation for each laptop).

Originally posted by: Chrono
hm..... how did you notice you had testicular cancer?

To anyone that might get squimish, skip over this next paragraph or so.

My urologist told me, after I told him my story, that he had never heard of anyone having a similar story like mine. It all started on a normal Sunday. I had a friend over and he and I were watching TV and chit chatting. I had gotten up to do something and then I went to sit back down and just as my bottom hit my seat I got the sharpest pain in my groin, as if I had just been kicked there by a NFL punter. I remember grimacing and trying to avoid giving my friend any hint that I was in pain as I was somewhat embarassed. I had no clue what had caused it. Did I sit on them? I had no clue. So I sweated out the rest of the visit as I knew he had to leave for work in not too long. Just after he left I dropped my pants to investigate. I saw nothing. No redness, no swelling or bruises. I was still in pain though. I would continue to be in pain that night and the rest of the week. It was so bad that I pretty much had to waddle. It hurt to have my boxers rub against them as I walked.

Throughout that next week it began to swell. I wasn't absolutely sure that it was swollen until it was nearly twice the size. I didn't see a doctor until a 10-12 days after that first Sunday because I, for whatever reason, just figured or hoped that it would go away. It wasn't until I hopped on WebMD.com and typed in "swollen testicle" and became absolutely freightened to see testicle cancer, hernia etc. etc. as possible culprits. The very next day I went in to the university health services center. That doctor kind of put some false hope in me that it was just an infection. He ordered an ultrasound and put me on antibiotics. Let me tell you, after each exam and ultrasound the pain got worse. It continued to grow until the point that I could cup the entire thing in my hand from the tip of my middle finger to the base of my hand. By that time I had already been sent to the Urologist who eventually performed my surgery. The first meeting with him he kind of knocked my hopes down but I'm glad because it gave me time to prepare for the inevitable. He told me he knew it was cancer. The ultrasound showed that only the testicle was swollen, not the epididimus which the "infection" would have had to go through before getting to the testicle. So for the testicle to be infected but not the epididimus, it just didn't make sense.

Anywho, sorry I don't feel like making a cliff notes for that. But thank you to anyone who does infact take the time to read it. And thanks to everyone who has given me their support!
 

Stifko

Diamond Member
Dec 8, 1999
4,799
2
81
Good luck Mango, stay strong you can beat it.

My dad is going through chemo now. They just pushed back his second round b/c he is too weak.
 

BooGiMaN

Diamond Member
Jul 5, 2001
7,955
0
0
sorry to be a downer but I wouldnt wish cancer on my worst enemy....it was the toughest thing i have ever had to do to see my mother go though it and the chemo, she passed away Jan 31, 2006

each chemo and cancer is different, they will absolutely tell you the side effects and everything you need to know...if they dont go somewhere else...do a a lot of research and ask lots and lots of questions, go to the american cancer society boards

hopefully you have a loving and supportive family and the kind of chemo you get is not that bad...i wish you the best, there are a lot of survivor stories out there unfortunately my mother wasnt one of them :(

i guess her passing recently has left me a bitter when it comes to talking about cancer and treatment
 

0

Golden Member
Jul 22, 2003
1,270
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0
I wish you the best. Ask a lot of questions, challenge your physicians. Sounds like what you have is curable, stay positive!

My mom was much older than you when she got cancer, she passed away July 14, 2005. I think its different when your older, and there are so many different cancers out there, and they respond differently to treatment. I didn't like seeing here doing chemo, as it was difficult for her, but there are always great stories, like Lance Armstrong. My prayers are for you, and a full recovery.
 

cavemanmoron

Lifer
Mar 13, 2001
13,664
28
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Nephew went thru the same stuff you are,
he is in his early 20's.

He is fine, after a long treatment process.

They nuked his lymph nodes too.

Hang in there, look for support groups,
more specialized than ATOT.

 

Rastus

Diamond Member
Oct 10, 1999
4,704
3
0
Good luck.

I had a friend that recently went through chemo. His only side effect was diarhea, so he was one of the lucky ones. He never missed a day of work through it either.
 

JinLien

Golden Member
Aug 24, 2005
1,038
0
0

Sorry and hope everything work out well for you. See as many doctors for as many opinions as possible. My dad had chemo & it didn't help but his cancer was way too well developed. I had 2 teachers in college that had chemo treatments and it save their lives from breast cancer.

Good luck!